Kill Thousands of Birds With One Stone Using This Alpha-1 Antitrypsin Deficiency Resource

The goal of the Alpha-1 Foundation is ultimately to find a cure for Alpha-1 Antitrypsin Deficiency (A1AD).

But along the way, they are also a resource for patients, families, and caregivers affected by the disease.

Because until a cure comes, patients need support and ways to cope with Alpha-1.

The organization was founded by three individuals who all suffer from the disease. Since 1995, they’ve been advocating, funding, and supporting research for Alpha-1. On their website, they provide a variety of resources for patients—some of which include:

  • A section specifically for those recently diagnosed with the illness
    1. Learning the basics of Alpha-1
    2. How to live with Alpha-1
    3. Resources that may be helpful
  • Information on support groups
  • Educational resources
  • Information for healthcare providers
    1. About Alpha-1
    2. Diagnosing Alpha-1
    3. The latest research on Alpha-1
  • Grant opportunities
  • Upcoming fundraisers and events
  • Ways to be an Alpha-1 advocate
  • The latest news on Alpha-1
  • Information on testing for Alpha-1

The website is a wealth of knowledge, all conveniently in one place. Life post-diagnosis is difficult for a myriad of factors, but the first obstacle most patients face is where to turn for more information about their illness. It’s easy to feel vulnerable, uninformed, and alone.

The Alpha-1 Foundation strives to eliminate that added stress for patients.

Now, instead of having to access numerous websites to find the information you need, just click here for practically any Alpha-1 Antitrypsin Deficiency resource you could ask for.


Share this post

Share on facebook
Share on google
Share on twitter
Share on linkedin
Share on pinterest
Share on print
Share on email
Close Menu