On January 12-14, 2018 leading minds from around the world will convene in Orlando, Florida for the annual Heme Biosynthesis and the Porphyrias Recent Advances Conference. Yes, it’s a mouthful, but for people suffering from rare hepatic porphyrias, it may be the most important weekend of the year.
The three-day symposium held at the Hyatt Regency in Orlando, Florida will focus on the most recent findings on the molecular biology and regulation of heme biosynthesis and the clinical features, pathophysiology, and current treatment of the acute hepatic and erythropoietic porphyrias. To learn more about this rare condition, click here.
The symposium is sponsored by Icahn School of Medicine at Mount Sinai, the American Porphyria Foundation, the Porphyrias Consortium, and the Genetic Disease Foundation.
Day 1 will be devoted to the clinical aspects and current treatments of each porphyria. Days 2 and 3 will focus on the latest research findings on heme biosynthesis and emerging molecular-based treatments for the porphyrias. Also, there will be a special session for patients on the latest advances in the porphyrias.
This event is an amazing opportunity for people living with this rare blood disease to meet and talk with scientists and medical experts and hear about the latest advancements in treatments. It is also a great way to connect with other people with porphyria and their care partners. For those who suffer from this painful and debilitating rare disorder, a gathering like this is a treat that exceeds any theme park.
