MDS Patient & Family Forum November 2, 2024 Birmingham, AL Many patients and caregivers have never met another person diagnosed with MDS until they connected with them at one of…
Move for MDS Walk October 20, 2024 Boston, MA Register for your local Move for MDS community walk, fundraise and show support to those effected by MDS by joining the…
MDS Patient & Family Forum October 5, 2024 New Haven, CT Many patients and caregivers have never met another person diagnosed with MDS until they connected with them at one…
Move for MDS Walk September 22, 2024 New York, NY Register for your local Move for MDS community walk, fundraise and show support to those effected by MDS by joining…
Move for MDS Walk August 25, 2024 Chicago, IL Register for your local Move for MDS community walk, fundraise and show support to those effected by MDS by joining the…
Alport Connect 2024 July 27-28, 2024 Denver, CO ASF’s patient and family meeting, Alport Connect, will return in 2024. The in-person event will be held in Denver, Colorado. Please check…
MDS Patient & Family Forum June 29, 2024 San Diego, CA Many patients and caregivers have never met another person diagnosed with MDS until they connected with them at one…
Moving Mountains HCU Conference 2024 June 29-30, 2024 Aurora, Colorado The HCU Network America’s 4th patient-expert conference will be held on June 29-30, 2024, in Aurora, CO. This is an…
The BHD Foundation's Meet the Expert World Pneumothorax Day Webinar June 24, 2024 Join us on World Pneumothorax Day for a special Meet the Expert event! We will be joined…
The Global Virtual Conference June 17-22, 2024 The Marfan Foundation’s Global Virtual Conference connects people living with genetic aortic and vascular conditions, their loved ones, healthcare providers, and researchers from…
The 2024 FSHD Patient Connect Conference June 15-16, 2024 Denver, CO The FSHD Connect 2024 will be hosted on June 15-16 in Denver, Colorado. Held every two years, it is the…
FUTURES National Conference May 23-26, 2024 Orlando, FL The CureDuchenne FUTURES National Conference is an annual event focused on bringing education, connection, and hope to the entire Duchenne community. Get…
Women's Wellness Tea May 11, 2024 Golden Valley Country Club The Women’s Wellness Tea is an educational, social (and very fun!) event that celebrates women while exploring habits that lead…
MDS Patient & Family Forum May 11, 2024 St. Louis, MO Many patients and caregivers have never met another person diagnosed with MDS until they connected with them at one…
The BHD Foundation's BHD Community Symposium 2024 October 12, 2024 This year's symposium is focussed on the patient community. The agenda is being set by the patients following feedback from…
Move for MDS Walk May 5, 2024 Nashville, TN Register for your local Move for MDS community walk, fundraise and show support to those effected by MDS by joining the…
According to a story from wlky.com, the TKO Fight Club is slated to hold its third annual Kentucky Bourby fundraiser at Progress Park. "We specifically use bourbon to fundraise for…
CureDuchenne Cares Dinner Session April 13, 2024 Pittsburgh, PA A NEIGHBORHOOD DINNER FOR CAREGIVERS AFFECTED BY DUCHENNE AND BECKER JOIN US FOR A CASUAL THREE-HOUR DINNER ON SATURDAY EVENING TO…
Move for MDS Walk April 7, 2024 Tampa, FL Register for your local Move for MDS community walk, fundraise and show support to those effected by MDS by joining the…
MDS Patient & Family Forum April 6, 2024 Baltimore, MD Many patients and caregivers have never met another person diagnosed with MDS until they connected with them at one of…
CureDuchenne Cares Workshop April 6, 2024 Long Island, NY A FULL DAY EVENT FOCUSED ON IMPROVING THE QUALITY OF LIFE FOR INDIVIDUALS WITH DUCHENNE AND BECKER. CureDuchenne Cares is an…
The overwhelming majority of rare diseases and conditions have a genetic basis. This means that the disease is the result of a genetic abnormality such as a mutation. These abnormalities…
CureDuchenne Cares Dinner Session March 16, 2024 Tampa, FL A NEIGHBORHOOD DINNER FOR CAREGIVERS AFFECTED BY DUCHENNE AND BECKER JOIN US FOR A CASUAL THREE-HOUR DINNER ON SATURDAY EVENING TO…
3rd Regional Symposium on Myelodysplastic Syndromes March 15-16, 2024 Kyoto, Japan The 3rd Regional Symposium on Myelodysplastic Syndromes will take place from 15-16 March 2024, in Kyoto, Japan. MDS is…
Champions in Miami 2024 March 9, 2024 Miami, FL This gala is not just an exquisite gathering; it serves as a significant source of support for CureDuchenne, empowering the organization…
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