Angel Aid Cares’ Rare Mother Meetup

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Rare Mother Meetup 6:00 PM, PST The Rare Mother Meetup will take place on the second Wednesday of each month and is hosted by Rare Mother Ashley Kenny. The meetup…

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Angel Aid Cares’ Rare Mother Meetup

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Rare Mother Meetup 6:00 PM, PST The Rare Mother Meetup will take place on the second Wednesday of each month and is hosted by Rare Mother Ashley Kenny. The meetup…

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Alexion Pharmaceuticals, Inc.’s Managing Your PNH Webinar

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Managing Your PNH Connect. Learn. Take Action. December 9, 2021, 6:30 PM Connecting patients and caregivers in the paroxysmal nocturnal hemoglobinuria (PNH) community. To register, click here. Acknowledgment: This event…

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Angel Aid Cares’ Rare Mother Meetup

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Rare Mother Meetup 6:00 PM, PST The Rare Mother Meetup will take place on the second Wednesday of each month and is hosted by Rare Mother Ashley Kenny. The meetup…

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Angel Aid Cares’ Rare Mother Meetup

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Rare Mother Meetup 6:00 PM, PST The Rare Mother Meetup will take place on the second Wednesday of each month and is hosted by Rare Mother Ashley Kenny. The meetup…

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Alexion Pharmaceuticals, Inc.’s Managing Your PNH Webinar

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Managing Your PNH Connect. Learn. Take Action. November 9, 2021, 7:30 PM Connecting patients and caregivers in the paroxysmal nocturnal hemoglobinuria (PNH) community. To register, click here. Acknowledgment: This event…

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The BHD Foundation’s BHD Virtual Symposium

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The BHD Virtual Symposium October 21-22, 2021 We would be absolutely delighted to welcome patients and families to both the clinical/research sessions as well as the patient-focused sessions. Please make…

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Angel Aid Cares’ Rare Mother Meetup

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Rare Mother Meetup 6:00 PM, PST The Rare Mother Meetup will take place on the second Wednesday of each month and is hosted by Rare Mother Ashley Kenny. The meetup…

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Mission: Cure’s Moments of Hope Gala and Party

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Moments of Hope Gala October 7, 2021 Celebrate with Mission: Cure as the organization shares progress from this year, recognizes the strength of its resilient patient community, and celebrates hope…

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Angel Aid Cares’ Rare Mother Meetup

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Rare Mother Meetup 6:00 PM, PST The Rare Mother Meetup will take place on the second Wednesday of each month and is hosted by Rare Mother Ashley Kenny. The meetup…

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PAINWeek’s PAINWeek Conference 2021

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PAINWeek Conference 2021 September 7-11, 2021 The Cosmopolitan of Las Vegas This conference is the most extensive event focused on pain management. This event invites professionals such as psychologists, social…

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September 7 is World Duchenne Awareness Day: Spreading Duchenne Muscular Dystrophy Awareness
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September 7 is World Duchenne Awareness Day: Spreading Duchenne Muscular Dystrophy Awareness

September 7, 2021 will be recognized as World Duchenne Awareness Day. This day will be set aside in recognition of awareness surrounding Duchenne muscular dystrophy, a rare and debilitating genetic…

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