Tags Posts tagged with "Event"

Event

-
0

-
0

-
0
Hosted in part by The Transverse Myelitis Association (TMA)

-
0

-
0
Nearly 500 myositis patients and caregivers are expected to attend this conference, hosted in the wonderful San Diego, CA! There will be over 80 sessions...

-
0
#DazzleVegas Adult early-bird registration: $299, ends July 7 Regular registration: $349, July 7–August 28 Junior Zebra Registration: $175

-
0

-
0
Come out to this live PBC event to learn, hear, and empower yourself on the latest PBC news and information Get the chance to listen...
Myelodysplastic syndromes

-
0
Our partner, The MDS Foundation, is hosting another wonderful event for patients and caregivers. The event is completely free, just don't forget to register! When: Saturday,...
Adrenoleukodystrophy

-
0
The United Leukodystrophy Foundation is hosting two two-day long events for families and medical professionals! Here's all you need to know about it before...
Focal segmental glomerulosclerosis (FSGS)

-
0
The Tampa Pig Jig is an annual fundraiser fair held to support NephCure Kidney International, which is a nonprofit that focuses on funding research...

-
0
Living with PBC: Learning Together For patients, family, healthcare professionals, and so many more! FEATURING: Certified PBC Nurse Educator, Jennifer Blood, and a Patient Ambassador, Deb Call 1-844-514-6294...
Cystinosis

-
0
Our wonderful partners at the Cystinosis Research Network (CRN) are providing the first series of live broadcasts from a Cystinosis conference! Simply make sure you're...

-
0

-
0
Register for the event here.

-
0

-
0

-
0
Register Here

-
0

-
0
$200 for members $230 for non-members There will be thought-leaders speaking, general and breakout sessions AND research updates!  

-
0
Rare Disease

-
0
On October 20th and 21st, the 2017 Rare Neuro-Immune Disorders Symposium (RNDS) will be held in Columbus, Ohio. The event is meant to bring together...

-
0
Pre-registration deadline is Monday, May 1, 2017.

-
0
IGSD2017

-
0
1234Page 1 of 4

We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.

Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Share your personal story. Comment on a post. Tag us @PatientWorthy. Become a contributor.

                                                     
© Copyright Patient Worthy