CureDuchenne's Cares Sessions: Helping Connect and Inform Patient Families November 7th, 2020, 6:30 pm The Sessions program from CureDuchenne is geared specifically towards patients and their families as well as…
The Ehlers Danlos Society's European Learning Conference November 7-8, 2020 This event will feature presentations from world-renowned experts on Ehlers-Danlos syndrome and related conditions, including the latest in research and…
CureDuchenne's Cares Sessions: Helping Connect and Inform Patient Families October 24th, 2020, 6:30 pm The Sessions program from CureDuchenne is geared specifically towards patients and their families as well as…
CureDuchenne's Cares Sessions: Helping Connect and Inform Patient Families October 17th, 2020, 6:30 pm The Sessions program from CureDuchenne is geared specifically towards patients and their families as well as…
CureDuchenne's Cares Sessions: Helping Connect and Inform Patient Families October 3rd, 2020, 6:30 pm The Sessions program from CureDuchenne is geared specifically towards patients and their families as well as…
CureDuchenne Cares Workshops: Hear The Latest From Experts September 26th, 2020, 8:00 am The Workshops program from CureDuchenne are day-long educational events that are oriented towards caregivers and Duchenne muscular…
The Global Genes RARE Patient Advocacy Summit September 21-23, 2020 This conference will be a convergence of a variety of rare disease stakeholders, such as rare disease patients, world renowned…
CureDuchenne's Cares Sessions: Helping Connect and Inform Patient Families September 19th, 2020, 6:30 pm The Sessions program from CureDuchenne is geared specifically towards patients and their families as well as…
CureDuchenne Cares Workshops: Hear The Latest From Experts September 12th, 2020, 8:00 am The Workshops program from CureDuchenne are day-long educational events that are oriented towards caregivers and Duchenne muscular…
The International Conference on Dupuytren Disease and Related Diseases September 3rd-4th, 2020 Oxford, UK This conference will be hosted by the University of Oxford and will feature a variety of…
CureDuchenne Cares Workshops: Hear The Latest From Experts August 29th, 2020, 8:00 am The Workshops program from CureDuchenne are day-long educational events that are oriented towards caregivers and Duchenne muscular…
The World Orphan Drug Conference USA 2020 The Global Orphan Drug Conference and Expo August 24th - August 26th, 2o20 in National Harbor, MD The conference is an event that…
CureDuchenne's Cares Sessions: Helping Connect and Inform Patient Families August 22nd, 2020, 6:30 pm The Sessions program from CureDuchenne is geared specifically towards patients and their families as well as…
RARE on the Road: a Rare Disease Leadership Tour June 27th, 2020 New Orleans, LA The Rare Disease Leadership Tour is designed to give insights and education to rare disease…
Speakers: Leah Weisbecker, Living with HAE & Marc Riedl Join this live presentation featuring a physician who treats HAE and an HAE patient advocate. You will also have the opportunity…
The WFH 2020 World Congress Kuala Lumpur, Malaysia The 2020 World Congress is a massive, international event that is focused specifically on blood disorders such as hemophilia and Bernard-Soulier syndrome.…
The RARE Drug Development Symposium June 11-12, 2020 The RARE Drug Development Symposium is intended as an event geared towards inspiring and educating rare disease advocates. Advocates, stakeholders, and patients…
Stand With HPP Live Webinar June 9th, 2020 at 6pm ET Listen to a physician and a patient or caregiver discuss topics about hypophosphatasia (HPP). Ask questions & gather information…
HDSA 35 New Orleans: The 35th Annual HDSA Convention June 4th-6th, 2020 The 35th annual convention is tailored for Huntington's disease patients and their families. Join the HDSA for three…
CureDuchenne's Cares Sessions: Helping Connect and Inform Patient Families May 30th, 2020, 6:30 pm The Sessions program from CureDuchenne is geared specifically towards patients and their families as well as…
RARE on the Road: a Rare Disease Leadership Tour March 28th, 2020 Minneapolis, MN The Rare Disease Leadership Tour is designed to give insights and education to rare disease advocates,…
Stand With HPP Live Webinar May 28th, 2020 at 6pm ET Listen to a physician and a patient or caregiver discuss topics about hypophosphatasia (HPP). Ask questions & gather information…
Running Wild for a Cure 5K Run-Walk Sunday, May 17th, 2020 This goal of this race is to raise funds for the Superficial Siderosis Research Alliance, a nonprofit organization dedicated…
CureDuchenne Cares Workshops: Hear The Latest From Experts May 16th, 2020, 8:00 am The Workshops program from CureDuchenne are day-long educational events that are oriented towards caregivers and Duchenne muscular…
Speakers: Jason Meyer, Living with HAE & Raffi Tachdijan Join this live presentation featuring a physician who treats HAE and an HAE patient advocate. You will also have the opportunity…
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