Cure Mito and iCaMP’s Empower&Inspire: Understanding and Accelerating Research for Leigh Syndrome Virtual Conference

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Empower&Inspire: Understanding and Accelerating Research for Leigh Syndrome Virtual Conference September 19, 2023 Please join us for a virtual conference focused on Leigh Syndrome. Researchers, industry, patients, and patient families…

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CureGRIN’s 2023 GRI Conference

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CureGRIN's GRI Conference 2023 March 23-26, 2023 Join us in Boston for this year's conference. GRI Conference 2023 is a special annual opportunity for clinicians, industry reps, GRI families, and…

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Cambridge Rare Disease Network’s RAREfest22

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The Cambridge Rare Disease Network presents RARE Fest 2022 Engage.Educate.Empower. November 25-26, 2022 WE’RE BACK IN PERSON FOR RAREFEST22!! For the experts and the curious of all ages. For everyone.…

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HCU Network America’s Rare X HCU Data Collection Program Facebook Live Chat: Oral Health Survey Webinar

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Rare X HCU Data Collection Program Facebook Live Chat: Oral Health Survey Webinar November 17, 2022 From short roots to crowding of teeth, patients with various types of homocystinuria experience…

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HCU Network America’s Cobalamin Disorders Virtual Meet-Up

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Cobalamin Disorders with Homocystinuria Meetup October 23, 2022 Online meet-ups are an opportunity to connect with patients and caregivers impacted by cobalamin disorders with elevations of homocysteine to one another…

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