Cambridge Rare Disease Network’s RAREfest22

  • Post author:
  • Post category:

The Cambridge Rare Disease Network presents RARE Fest 2022 Engage.Educate.Empower. November 25-26, 2022 WE’RE BACK IN PERSON FOR RAREFEST22!! For the experts and the curious of all ages. For everyone.…

Continue Reading Cambridge Rare Disease Network’s RAREfest22

HCU Network America’s Cobalamin Disorders Virtual Meet-Up

  • Post author:
  • Post category:

Cobalamin Disorders with Homocystinuria Meetup October 23, 2022 Online meet-ups are an opportunity to connect with patients and caregivers impacted by cobalamin disorders with elevations of homocysteine to one another…

Continue Reading HCU Network America’s Cobalamin Disorders Virtual Meet-Up

World Alliance of Pituitary Organizations’ Webinar: Fighting Against the Global Issue of Substandard and Falsified (SF) Medical Products

  • Post author:
  • Post category:

Online Webinar: Fighting Against the Global Issue of Substandard (SF) and Falsified Medical Products With Dr. Bahijja Raimi-Abraham October 20, 2022 Dr Bahijja Raimi-Abraham is a pharmacist, Lecturer in Pharmaceutics…

Continue Reading World Alliance of Pituitary Organizations’ Webinar: Fighting Against the Global Issue of Substandard and Falsified (SF) Medical Products

The PBCers Organization’s 2022 PBC Conference

  • Post author:
  • Post category:

2022 PBC Conference October 13-15, 2022 Durham, NC Don't miss this year's PBC Conference, an event geared towards education, support, and research related to primary biliary cholangitis and the patient…

Continue Reading The PBCers Organization’s 2022 PBC Conference

HCU Network America’s Classical HCU Virtual Meet-Up

  • Post author:
  • Post category:

Classical HCU Virtual Meet-Up October 9, 2022 Meetups are an opportunity to connect patients and caregivers impacted by Classical Homocystinuria to one another virtually. About this event Struggling with the…

Continue Reading HCU Network America’s Classical HCU Virtual Meet-Up

Danny’s Dose’s Family Education Event: Hot Springs, AR

  • Post author:
  • Post category:

Danny's Dose Family Education Event: Hot Springs, AR October 1, 2022 EDUCATION:  Learn the "STEPS TO PROTECTION"  for proper EMERGENCY PREPAREDNESS,  "TREATMENT PLANS", working with your EMS/ER Staff, your existing…

Continue Reading Danny’s Dose’s Family Education Event: Hot Springs, AR

GACI Global’s Worldwide Walk

  • Post author:
  • Post category:

GACI Global's Worldwide Walk September 25, 2022 The GACI/ARHR2 community, their family, friends, and supporters from around the world will be unified on one day, around one shared cause, when…

Continue Reading GACI Global’s Worldwide Walk

Burning Nights’ Online CRPS Support Group

  • Post author:
  • Post category:

Online CRPS Support Group August 17, 2022 Join Burning Nights CRPS Support for our next online (CRPS) peer support group on Wednesday 17 August 2022. Our online peer support groups…

Continue Reading Burning Nights’ Online CRPS Support Group