The WFH 2020 World Congress Kuala Lumpur, Malaysia The 2020 World Congress is a massive, international event that is focused specifically on blood disorders such as hemophilia and Bernard-Soulier syndrome.…
The 2019 Toronto Patient Education Conference Are you a sarcoidosis patient? Well don’t miss this important patient event. At this conference, sarcoidosis patients and their families will have the opportunity…
The 2019 Boston One-Day Regional Conference Are you a GBS or CIDP patient? Then don’t miss this one day patient conference. At this event, GBS and CIDP patients and…
The Eighth China Rare Disease Summit The China Rare Disease Summit is the largest rare disease focused event held in China. A variety of rare disease stakeholders from across the…
The Global Genes RARE Patient Advocacy Summit This conference will be a convergence of a variety of rare disease stakeholders, such as rare disease patients, world renowned experts, and caregivers.…
The 2019 Boston Patient Education Conference Are you a sarcoidosis patient? Well don’t miss this important patient event. At this conference, sarcoidosis patients and their families will have the opportunity…
The 2019 Indianapolis One-Day Regional Conference Are you a GBS or CIDP patient? Then don't miss this one day patient conference. At this event, GBS and CIDP patients and their…
The 11th Annual Scientific Workshop Science of Small Trials in the Age of Biological Plausability The 11th Annual Scientific Workshop will be a convergence of key regulatory officials, researchers, and…
The 2019 Cincinnati Patient Education Conference Are you a sarcoidosis patient? Well don’t miss this important patient event. At this conference, sarcoidosis patients and their families will have the opportunity…
The KIF1A Family & Scientific Conference KIF1A.ORG is putting together its very first KIF1A focused family and science conference. This conference will be an unprecedented opportunity for KIF1A associated neurological…
The Denver Patient Education Conference 2019 Are you a sarcoidosis patient? Well don’t miss this important patient event. At this conference, sarcoidosis patients and their families will have the opportunity…
The 6th International Conference of Glycoproteinoses "Translating Scientific Discovery Into Therapies" This international event will include researchers, patients, and caregivers that are involved in the international glycoprotein disease communities. This…
The 30th Annual PMD Family Support Conference 2019 Indianapolis, Indiana This event is a valuable opportunity for Pelizaeus-Merzbacher disease patients and their families to come together for a valuable time…
The MAGIC Foundation's 25th Annual Convention 2019 This comprehensive educational program will be an opportunity for patients, their families, and caregivers to learn the latest information about a variety of…
The 2019 Biennial Conference The Glut1 Deficiency Foundation's biennial conference is an event that you won't want to miss. The conference will feature a variety of sessions related to various…
The 2019 AXYS Family Conference Atlanta, Georgia Are you or one of your family members affected by Trisomy X or other X and Y chromosome variations? Then this conference is…
The 2019 Annual SMA Conference Anaheim, California Cure SMA's annual conference is the largest conference in world focused on spinal muscular atrophy. The event includes and event for both patient…
The 2019 LPA 62nd Annual National Conference San Francisco, California The Little People of America's annual conference is the ultimate experience for people affected by dwarfism and diastrophic dysplasia. This…
HDSA 34 Boston: The 34th Annual HDSA Convention The 34th annual convention is tailored for Huntington's disease patients and their families. Join the HDSA for three days of educational sessions,…
The 2019 Scientific Symposium & Family Conference Itasca, Illinois This event features a scientific symposium for leukodystrophy researchers as well as a conference for leukodystrophy patients and their families. These…
Mitochondrial Medicine 2019 Mitochondrial Medicine 2019 is the annual symposium hosted by the United Mitochondrial Disease Foundation, an event that has been widely regarded by patient families, researchers, and physicians…
The 2019 Annual Conference This will be the 25th year of PPMD's annual conference, which is geared towards Duchenne muscular dystrophy patients, their families, researchers, caregivers, and physicians. Don't miss…
The Oklahoma City Patient Education Conference 2019 Are you a sarcoidosis patient? Well don't miss this important patient event. At this conference, sarcoidosis patients and their families will have the…
The 2019 Living Rare, Living Stronger NORD Patient & Family Forum Featuring The 2019 Rare Impact Awards As published on NORD's website, the 2019 Living Rare, Living Stronger NORD Patient…
The 2019 Living Rare, Living Stronger NORD Patient & Family Forum featuring the Rare Impact Awards 2019 This rare disease patient forum brings together health professionals, physicians, patients, and medical…
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