CureDuchenne's Cares Sessions: Helping Connect and Inform Patient Families November 7th, 2020, 6:30 pm The Sessions program from CureDuchenne is geared specifically towards patients and their families as well as…
The Ehlers Danlos Society's European Learning Conference November 7-8, 2020 This event will feature presentations from world-renowned experts on Ehlers-Danlos syndrome and related conditions, including the latest in research and…
The 14th International VHL Medical/Research Symposium October 29-31, 2020 Amsterdam, Netherlands This event is geared towards the medical and research community. The conference will feature scientific research presentations on findings…
CureDuchenne's Cares Sessions: Helping Connect and Inform Patient Families October 24th, 2020, 6:30 pm The Sessions program from CureDuchenne is geared specifically towards patients and their families as well as…
CureDuchenne's Cares Sessions: Helping Connect and Inform Patient Families October 17th, 2020, 6:30 pm The Sessions program from CureDuchenne is geared specifically towards patients and their families as well as…
CureDuchenne's Cares Sessions: Helping Connect and Inform Patient Families October 3rd, 2020, 6:30 pm The Sessions program from CureDuchenne is geared specifically towards patients and their families as well as…
CureDuchenne Cares Workshops: Hear The Latest From Experts September 26th, 2020, 8:00 am The Workshops program from CureDuchenne are day-long educational events that are oriented towards caregivers and Duchenne muscular…
The Global Genes RARE Patient Advocacy Summit September 21-23, 2020 This conference will be a convergence of a variety of rare disease stakeholders, such as rare disease patients, world renowned…
CureDuchenne's Cares Sessions: Helping Connect and Inform Patient Families September 19th, 2020, 6:30 pm The Sessions program from CureDuchenne is geared specifically towards patients and their families as well as…
CureDuchenne Cares Workshops: Hear The Latest From Experts September 12th, 2020, 8:00 am The Workshops program from CureDuchenne are day-long educational events that are oriented towards caregivers and Duchenne muscular…
The International Conference on Dupuytren Disease and Related Diseases September 3rd-4th, 2020 Oxford, UK This conference will be hosted by the University of Oxford and will feature a variety of…
CureDuchenne Cares Workshops: Hear The Latest From Experts August 29th, 2020, 8:00 am The Workshops program from CureDuchenne are day-long educational events that are oriented towards caregivers and Duchenne muscular…
The World Orphan Drug Conference USA 2020 The Global Orphan Drug Conference and Expo August 24th - August 26th, 2o20 in National Harbor, MD The conference is an event that…
CureDuchenne's Cares Sessions: Helping Connect and Inform Patient Families August 22nd, 2020, 6:30 pm The Sessions program from CureDuchenne is geared specifically towards patients and their families as well as…
CFRI Presents: The 33rd Annual National CF Education Conference: Partners in Progress ~ An Exciting Virtual Experience In light of the ongoing coronavirus/COVID-19 pandemic, CFRI's annual education conference will be…
The 20th Annual ITP Conference August 1-2, 2020 NOTE: In light of the ongoing coronavirus/COVID-19 pandemic, this year's event will be held entirely online. The ITP conference is a unique…
RARE on the Road: a Rare Disease Leadership Tour June 27th, 2020 New Orleans, LA The Rare Disease Leadership Tour is designed to give insights and education to rare disease…
The 2020 Virtual Family Conference June 25-27, 2020 This event features live streamed webinars featuring leukodystrophy researchers and relevant content for leukodystrophy patients and their families. The conference will also…
RARE on the Road: a Virtual Rare Disease Leadership Tour June 23rd-24th, 2020 The Virtual Rare Disease Leadership Tour is designed to give insights and education to rare disease advocates,…
Speakers: Leah Weisbecker, Living with HAE & Marc Riedl Join this live presentation featuring a physician who treats HAE and an HAE patient advocate. You will also have the opportunity…
The World Federation of Hemophilia's Virtual Summit: Connecting the Global Bleeding Disorders Community June 15-19, 2020 In light of the cancellation of WFH's World Summit due to the ongoing coronavirus/COVID-19…
The RARE Drug Development Symposium June 11-12, 2020 NOTE: Due to the ongoing coronavirus/COVID-19 pandemic, this event is now virtual. The RARE Drug Development Symposium is intended as an event…
Stand With HPP Live Webinar June 9th, 2020 at 6pm ET Listen to a physician and a patient or caregiver discuss topics about hypophosphatasia (HPP). Ask questions & gather information…
Speakers: Viola Zhu, MD, PhD, University of California Irvine & Larissa, Patient Ambassador Join us to learn more about ALK+ non-small cell lung cancer (NSCLC) and ALUNBRIG (brigatinib) as a…
HDSA 35 New Orleans: The 35th Annual HDSA Convention June 4th-6th, 2020 The 35th annual convention is tailored for Huntington's disease patients and their families. Join the HDSA for three…
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