Tags Posts tagged with "Event"

Event

After the 10th International Workshop on Waldenstrom’s Macroglobulinemia for researchers and clinicians, the IWWM10 International Doctor- Patient Forum will be held in the same...

Put Europe on your calendar for 2018! Usher patients, researchers and family members welcome to the two-day Symposium in July. For more information, contact ush2018@usher-syndrome.org

CISCRP hosts a 5K to honor and celebrate the volunteers who have donated time to help with clinical trial research. Fee: $30

International Alliance Of Patients' Organizations hosts the 8th Global Patients Congress. 200 reps from different healthcare facets will provide expertise, connection, and knowledge related...

The Mastocytosis Society presents a support group meeting open to the public in Chicago, IL. Be sure to RSVP to Jeannie Dunn: dunnj4@comcast.net

International Waldenstrom’s Macroglobulinemia Foundation, IWMF, presents the annual Educational Forum where patients and caretakers alike can come and learn from disease specialists about Waldenstrom...

AKU Society is hosting it's 2nd International Patient Workshop in Liverpool's Bluecoat. The event is intended to educate about new scientific research, clinical trials,...

FREE educational program provided by CISCRP, The Center For Information & Study On Clinical Research Participation, created to educate the public about participating in...

Join The Coalition for Hemophilia B at their 12th Annual Symposium to improve the quality of life for those living with and treating Hemophilia...

The only conference in the United States that shows guidance as how to involve patients through the process of clinical research. Industry Fees: $1,595 Early Bird...

Alabama Rare hosts the 3rd Rare Disease Day Advocacy Training & State House Advocacy Event in Montgomery, AL. It's a great way for advocates to...

Alabama Rare is hosting the 5th annual rare disease genetics symposium with intent to educate and advise patients, caregivers and medical professionals on how...

The Mastocytosis Society presents a support group meeting open to the public in Springfield, MO. Be sure to RSVP to Heather Largent: h3largent@gmail.com

The Mastocytosis Society presents a support group meeting open to the public in Austin, Texas. Be sure to RSVP to Cheri Smith: scoach62@hotmail.com Please put the meeting...

The Mastocytosis Society presents a support group meeting open to the public in Minneapolis, MN. Be sure to RSVP to Melissa Lovett: minnesotasupport@tmsforacure.org northcentralsupport@tmsforacure.org

The Mastocytosis Society presents a support group meeting open to the public in Cape Coral, Florida. Dr. Theoharides MD, PhD is guest speaking. Be sure...

If you live near Pompano Beach in Florida, the Water Balloon Bulls-eye charity event is not to be missed, reported Sun Sentinel. The event...

Patient Worthy is proud to announce we are participating in Patients as Partners EU in London, UK on January 23rd. Patients as Partners EU represents the...

The Canadian Fabry Association wants to create awareness for rare diseases and you can help! They want to get as many people to wear a...

December and January can be busy months with all the running around and family activities. Before your calendar fills up with holiday happenings, the...

The fate of newborn screening for Pompe disease and MPS-1 throughout the state of VA will be determined next week. The VA Newborn Screening Advisory...

No one knows how difficult living with hypereosinophilic syndrome (HES) is unless you walk in the shoes of those who have it, treat it,...

On January 12-14, 2018 leading minds from around the world will convene in Orlando, Florida for the annual Heme Biosynthesis and the Porphyrias Recent...

Zero. Nada. Zip. Usually having nothing isn't a good thing, but in the case of people with uncontrolled seizures--like those that occur with Dravet...