Organizations Worldwide Unite for Cyclic Vomiting Syndrome Patients

Cyclic Vomiting Syndrome is a rare and devastating condition causing intense nausea, and persistent vomiting. Many people are unaware of the disease, and many times it goes misdiagnosed or completely undiagnosed. That’s why organizations across the world are grouping together. Keep reading to find out more, or follow the original story here.

On March 5th 2018, the Cyclic Vomiting Syndrome Association (CVSA) of United States and Canada announced partnerships with other CVSA organizations worldwide. The group consists of over 20 countries and includes Denmark, Germany, Ireland, Italy, Japan, Spain, the United Kingdom, and the Netherlands.

At the core, is a desire to spread awareness about cyclic vomiting syndrome (CVS). A large number of children and adults go undiagnosed each year. Many more are incorrectly diagnosed with eating disorders.

Proper treatment for CVS often can only be administered at a hospital. Fluids given via IV, a variety of medications, and sometimes sedation may all be part of treatment. In extreme cases, CVS causes tears in the esophagus and can even lead to death.

Each of the more than 20 nations joining together joins an effort to ensure CVS is thoroughly understood across the globe. This kind of unity also allows for the sharing of resources and information which will improve patient outcomes as well as diagnostic measures.

CVSA US’s co-founder, Kathleen Adams remembers a time when only a few people made up her organization. She helped start CVSA US after her daughter was diagnosed. Now the association boasts hundreds of members and their influence can spread even further.

“By working together across countries we reinforce that CVS is a global issue affecting the lives of kids and adults alike,” says CVSA UK’s president, Robin Dover.

She continues to explain how education is key to helping those with CVS “As we raise awareness of CVS and the associated symptoms, we are always amazed by how many people have a personal connection to someone who fits the description of a CVS sufferer. Together we provide hope.”

CVSA US focused their attention this year on creating guidelines to ensure effective emergency treatment of CVS. This assists patient sin receiving crucial care in places where they are often most misdiagnosed such as walk-in clinics and emergency rooms.

More information, and opportunities to support CVSA US can be found here.


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