Ashley Moore survived cancer. For many people, that’s enough. Moore, however, chose to give back in a surprisingly direct and immediate way. She decided to become a nurse. Keep reading…
A new study conducted at Binghamton University demonstrated that pancreatic cancer cells can be killed with a dual thermal ablation process, which is the combination of freezing and heating, reports…
We hope that everybody is having a great Easter, Passover, or first taste of spring! This week we have a story about sisters with Batten disease who are finally being…
La Jolla Pharmaceutical recently announced a new clinical trial targeting thalassemia. The trial, described as pivotal, investigates a drug referred to as LJPC-401. The treatment is intended to help patients…
As we close out the month of March - it's important to give a little thought to some of the lesser-known rare diseases that are often overlooked. Bleeding disorders is…
According to a story from cancercompass.com, a recent study has demonstrated that income level is a significant factor in determining survival for patients with anal cancer. In general, the study…
According to a story from medicalxpress.com, a recent study suggests that cognitive deficits that can occur as side effects of targeted brain cancer drugs could be successfully reversed with therapy.…
A recent story from The Independent is touting the results of a clinical trial that tested stem cells transplants for multiple sclerosis. The transplant appears to help "reset" the patient's…
According to a story from GlobeNewswire, the biotechnology company argenx announced recently that its investigational therapy ARGX-113 was granted orphan drug status by the European Commission. This designation is based…
The disease may be daunting, but it won't stop young, determined woman Ellis Kerton. According to LincolnshireLive, Ellis learned when she was 19-years-old that she was positive for Huntington's disease.…
According to an article from the Augusta Free Press, a research team from Vanderbilt University and the Virginia Tech Carilion Research Institute has successfully managed to uncover the manner in…
According to a story from mysunshinecoast.com.au, an international research team has uncovered a potential biomarker that could help develop treatments for multiple myeloma, a rare form of cancer. Currently, multiple…
According to a story from the Nottingham Post, the family members of brain cancer patients are putting their time and money towards the funding of a cutting edge MRI scanner…
According to a story from ibdnewstoday.com, a recent study from Italy suggests that people with severe cases of inflammatory bowel disease are more likely to develop non-alcoholic fatty liver disease.…
Michael Mullan was only a baby when he was diagnosed with cancer for the first time-- specifically neuroblastoma, a childhood cancer which had a low survival rate. Since then, he…
One of Patient Worthy’s partners, The MDS Foundation, will be hosting another FREE event! Event Summary: Whether you are a newly diagnosed patient, a long-term survivor, or a caregiver this event…
A recently published study examines the response of motor nerve cells to motor neuron disease. Researchers hope that by more completely understanding this cellular response that they may be able…
According to a story from Everyday Health, The U.S. Food and Drug Administration (FDA), has recently approved a new drug for the treatment of recently diagnosed patients with Hodgkin disease.…
According to a story from McGill University, researchers from the school, partnered with scientists at the University of Alberta, have unearthed a new discovery that could lead to new therapies…
According to a story from GlobeNewswire, The pharmaceutical company AveXis, Inc., a company that specializes in the development of gene therapies, recently announced that its candidate AVXS-101 was awarded SAKIGAKE…
According to a story from Innovation Toronto, a recent study has helped develop methods that could be used to create cell-based, personalized immunotherapy treatments that could be used to treat…
According to a story from brightsurf.com, a recent research finding suggests that fibrolamellar hepatocellular carcinoma, a rare form of liver cancer that can occur in children, is capable of metastasis…
According to a story from healio.com, scientists have developed an easy to use testing method for Barrett's esophagus, which can be a precursor to esophageal cancer. The new device combines…
I lived with Ehlers-Danlos syndrome (EDS), a rare connective tissue disorder, my whole life and had no idea until I was 21. The symptoms were all so random, separate, and…
According to a story from Mirror Online, 38-year-old Laura Cartner had been complaining of severe headaches and seemed to be losing some of her coordination. She also had a past…
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