Editor’s Choice: What’s Happening in Treatment News?

Happy Friday everyone!

This was a week with a highlight on research: we cover the state of ME/CFS information at the moment, an exciting treatment approval for people with ulcerative colitis, and a positive study for the glioblastoma. Additionally, we have a story shared by a family who lost a daughter to mitochondrial disease.

Sit back and enjoy this week’s Editor’s Choice.

The State of Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome Research in 2018

We watched a great lecture on the current state of ME/CFS research– we recommend you watch the whole thing on youtube, but if you don’t have have time, check out our highlights here.

“She Led the Life of a Carefree Child With No Limitations” Connor Family Faces Heartbreak After Losing Child to Mitochondrial Disease

Many rare families have to face the devastation of losing a child. The Connor family speaks about the journey they faced after the passing of their daughter.

Read about it here.

DCVax: A Promising New Treatment for Glioblastoma

Glioblastoma is a devastating form of brain cancer– however researchers are working on using the immune system to combat it.

Read about it here.

Ulcerative Colitis Patients Have a New FDA Approved Treatment

For those suffering from ulcerative colitis, the FDA has good news for you! A treatment may be headed your way!

Read about it here.

Do you have a rare disease experience of your own? Share with us here.

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