Editor’s Choice: Do You Think This Was Rare Disease Discrimination?

Happy Thursday!

Today, we’re highlighting an article on a story about rare disease discrimination, followed by news about a musician who went public with a rare diagnosis. After that, we have updates on Duchenne muscular dystrophy research, and a useful diagnostic tool.

Sit back and enjoy this week’s Editor’s Choice.



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Legendary Guitarist Peter Frampton Announces Inclusion Body Myositis Diagnosis

Rare disease can affect anyone– here’s one story of it impacting a high profile musician.
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Mother and Child Kicked off American Airlines Flight Because of Their Ichthyosis

Their condition isn’t contagious… so why was this mother and child duo kicked off their flight?
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New Tool Has the Potential to Identify the Genetic Causes of Rare Diseases

Receiving an accurate diagnosis is a challenge throughout the rare disease world. This tool might help.
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CRISPR Successfully Treats Duchenne Muscular Dystrophy in Mouse Model

While it’s a long way from human approval, this DMD treatment shows promise in mice.


Do you have a rare disease experience of your own? Share with us here.

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