Editor’s Choice: From Wisconsin Moms to Jeopardy Hosts, Rare Cancers can Affect Anyone

Happy Wednesday Everyone!

We’re excited for the spring weather coming up! Today, we’re highlighting an article on some good news for the rare community in canada, followed by an update on leukoencephalopathy research. After that, we have news on a high-profile pancreatic cancer patient, and a story from a mom who fought cancer.

Sit back and enjoy this week’s Editor’s Choice.


New Canadian Medical Center Sets its Sights on Treating Rare Diseases

Much of the mainstream health system isn’t designed for zebras– this center is working on providing a space designed for rare patients.


Cause of Rare Form of Pediatric Leukoencephalopathy Discovered

Understanding a disorder is key to treating symptoms– for patients with this ultra-rare disease, research has just offered a little more insight.


Watch: “Jeopardy!” Icon Alex Trebek Announces His Pancreatic Cancer Diagnosis

Pancreatic cancer is a hard-to-treat and devastating disease– our thoughts are with Jeopardy host, Alex Trebek.

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Against the Odds: Maria’s Journey with – and beating – Rare Epithelioid Sarcoma

Maria shares a candid take on a rare form of sarcoma, and how it impacted her life.

Do you have a rare disease experience of your own? Share with us here.

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