Editor’s Choice: Adjusting to Life with a Rare Disease

Happy Thursday!

Today, we’re highlighting two patient stories on adjusting to life and staying strong after a rare diagnosis. Next, we have an article about parents of children with Batten disease who take action, followed by an overview on Addison’s disease.
Sit back and enjoy this week’s Editor’s Choice.

 

My Life Before and After Chronic Illness

 

One PW contributor discusses how an autoimmune disease disrupted her once go-with-the-flow lifestyle, but gave her new things to value.

 

Living with Chronic Illness. Finding Your Inner Strength.

 

Chronic illness isn’t easy, but it can bring strength you didn’t know you had to the surface.

 

Parents of Kids Affected by Batten Disease Take Legal Action to Maintain Access to Critical Treatment

Parents fight a legal battle to give their children the best chance at a healthy life.

 

Addison’s Disease: A Primer – Symptoms, Diagnosis, and Treatment
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Ever heard of Addison’s disease? Here’s an overview.


Do you have a rare disease experience of your own? Share with us here.

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