Editor’s Choice: Game of Thrones, Rare Disease, and Letting it Out

Happy Thursday!

Today, we’re highlighting a piece from a PW contributor sharing why it’s important for people in the rare disease community to vent sometimes. If you’d like to use your voice to give feedback, we’re also sharing a feedback survey– it takes five minutes to fill out, and you’ll be entered for a chance to win an Amazon gift card. Additionally, we have an article talking about disability in Game of Thrones, and a story on how drug companies are using the Orphan Drug Act,



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When Dealing with Rare Diseases, Sometimes We Need to Vent



Whether you’re a caregiver or patient, the rare disease life can be hard. Don’t feel bad if you need to get it off your chest sometimes.
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It Took Bran Stark Seven Seasons to Get a Wheelchair: Disability Culture in Westeros


Media portrayals shape how many people see disability– what do YOU think of the portrayal in GOT?
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Share Your Voice


Want to win an Amazon gift card AND send us some feedback? Check out this survey.
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Are Drug Companies Exploiting the Orphan Drug Act? Of Course They Are

The Orphan Drug Act exists to help the rare community… but are companies abusing it?
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Do you have a rare disease experience of your own? Share with us here.

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