Editor’s Choice: Game of Thrones, Rare Disease, and Letting it Out

Happy Thursday!

Today, we’re highlighting a piece from a PW contributor sharing why it’s important for people in the rare disease community to vent sometimes. If you’d like to use your voice to give feedback, we’re also sharing a feedback survey– it takes five minutes to fill out, and you’ll be entered for a chance to win an Amazon gift card. Additionally, we have an article talking about disability in Game of Thrones, and a story on how drug companies are using the Orphan Drug Act,

 

When Dealing with Rare Diseases, Sometimes We Need to Vent

 

 

Whether you’re a caregiver or patient, the rare disease life can be hard. Don’t feel bad if you need to get it off your chest sometimes.

 

It Took Bran Stark Seven Seasons to Get a Wheelchair: Disability Culture in Westeros

 

Media portrayals shape how many people see disability– what do YOU think of the portrayal in GOT?

 

Share Your Voice

 

Want to win an Amazon gift card AND send us some feedback? Check out this survey.

 

Are Drug Companies Exploiting the Orphan Drug Act? Of Course They Are
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The Orphan Drug Act exists to help the rare community… but are companies abusing it?


Do you have a rare disease experience of your own? Share with us here.

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