This week, we’re highlighting an story about a woman with Bechet disease who advocates for herself and others. Next, we have an article discussing the difficulty of caring for someone with a rare disease while managing your own health, followed by a piece on microbiome research. Last but not least, we’re sharing an article on the work advocacy groups in the US are doing to promote rare disease-friendly legislation.
Sit back and enjoy this week’s editor’s choice!
After an arduous journey with a rare disease, Beth is helping patients going through similar challenges.
We all want to be there for the people we love– but how do we simultaneously manage our own health needs?
Microbiome research is a hot topic right now– but how are patients being protected throughout it?
Newborn screening saves lives, and these groups are working to make it more accessible.