This week, we’re highlighting an story about a woman with Bechet disease who advocates for herself and others. Next, we have an article discussing the difficulty of caring for someone with a rare disease while managing your own health, followed by a piece on microbiome research. Last but not least, we’re sharing an article on the work advocacy groups in the US are doing to promote rare disease-friendly legislation.
Sit back and enjoy this week’s editor’s choice!
After an arduous journey with a rare disease, Beth is helping patients going through similar challenges. [/one_half_last] [one_half]
We all want to be there for the people we love– but how do we simultaneously manage our own health needs?
Microbiome research is a hot topic right now– but how are patients being protected throughout it?
Newborn screening saves lives, and these groups are working to make it more accessible.