Editor’s Choice: Advocating for Equitable and Accessible Health Care

Happy Thursday!

It’s cold and flu season around our parts, so we hope everyone reading this has dodged the fall viruses!
This week, we’re sharing a recap of a Global Genes event. We also have two pieces on making health care more equitable and accessible. Lastly, we have a story about an infant who has to travel long distances for rare disease treatment.

Sit back and enjoy this week’s editor’s choice.



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2019 Global Genes Rare Patient Advocacy Summit Highlights: Part One

If you weren’t able to make it to the Global Genes Rare Patient Advocacy Summit, check out our recap!
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Identifying Skin Conditions Can be a Pain for People of Color. This Instagram Account Can Help

It can be difficult for people of color to accurately identify skin conditions, because reference photos often show images on white skin. However, people are working to change that.
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Health Disparities in Native American Communities

Following Indigenous People’s Day, we wanted to discuss the health disparities Native American Communities still face.
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Infant With Pompe Disease has to Travel 220 Miles to get Treatment

When your disease is rare, your treatment also be rare… which can mean long bouts of travel.

Do you have a rare disease experience of your own? Share with us here.

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