Editor’s Choice: New Year, New Patient Stories

Happy New Years!

We’re back with a batch of new article! This week, we’re highlighting four stories: an interview on 20 years with dystonia, a young woman stuck in a dream, a brand new biobank, and some heroes worth celebrating. Have a great start to January and enjoy this week’s editor’s choice!


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AMADYS Interview with Tom Seaman and Matthieu Creson: Living with Dystonia for 20 years.

One challenge of chronic illness is that you have to deal with it for years and years on end. Check out this interview about living with dystonia longterm.



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“It Was Like Being Trapped in a Dream”: Her Experience With Sleeping Beauty Disorder

One woman shares the story of living with a rare neurological condition that trapped her in a dream for a month. [/one_half_last] [one_half]


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CureDuchenne Biobank has Launched!

Patients can help accelerate DMD research by participating in this biobank!

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Meet Some of the Heroes in Myeloproliferative Neoplasms!


Read about individuals celebrated for making incredible contributions to this rare disease space.


Do you have a rare disease experience of your own? Share with us here.

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