Editor’s Choice: Studies and Advice

Happy Friday!

If you’re observing Memorial Day, enjoy the upcoming long weekend. Going to use the time to brush up on a little rare disease news? We’ve got three articles to help you along. The first details a study that found a potential cause for a group of rare childhood neurological disorders. The second article highlights some direct-from-the-doctor advice for muscular dystrophy patients to stay safe during the COVID-19 pandemic. And finally, a new report finds that the opioid prescription rate in hemophilia patients is much higher than reported.


Defective Immune Cells Cause Rare Childhood Neurological Disorders

A recent University of Sheffield news release explores findings which highlight a potential cause of leukodystrophies: immune cells


Opioid Use to Treat Hemophilia Heavily Underreported

Are opioids an effective and frequently-prescribed treatment for hemophilia? Actually, according to Hemophilia News Today, opioids are prescribed at a much higher rate than reported.


COVID-19 Advice for Patients with Becker or Duchenne Muscular Dystrophy

Doctors are sharing their advice for patients with Becker or Duchenne muscular dystrophy. Check out their suggestions on how to stay safe and healthy.


Do you have a rare disease experience of your own? Share with us here.

Share this post

Share on facebook
Share on google
Share on twitter
Share on linkedin
Share on pinterest
Share on print
Share on email
Close Menu