Train Keeps a Rolling: Life as a Musician with PSP

A new film is set to premiere tomorrow, and it depicts the life of Jeff Golub. This famous musician was known for his talent on the guitar, but what many people don’t know is that he lived with progressive supranuclear palsy (PSP). On October 6, Train Keeps A Rolling will premiere in New York City, detailing Golub’s last years.

Train Keeps A Rolling

Golub is known for his skills on guitar, and he has played with legends like Tina Turner, Rod Stewart, Vanessa Williams, Bill Evans, Peter Wolf, and Billy Squiers. His impressive career doesn’t end there, though. He has recorded 11 solo albums since 1988, creating music “from the heart.”

Towards the end of his career, his health began to deteriorate considerably. He lost his sight at age 56, which is what prompted filmmaker Kyle I. Kelley to create a documentary about him. Initially, the plan was to create a short film that detailed Golub’s strength and resilience. However, this idea changed as his symptoms continued to evolve and progress.

Kelley began following more aspects of Golub’s life: his interactions with his wife and sons, his deteriorating health, and how this health impacted his performance and career. Additionally, he captured one of the major struggles that rare disease patients face: diagnosis. Golub wasn’t officially diagnosed with PSP until a month before his death.

About the Premiere

The premiere of Train Keeps A Rolling will take place on October 6, 2021 at New York’s City Winery. CurePSP, who provided seed funding for the film, is sponsoring the event. In return, the proceeds will go towards CurePSP’s various programs. The money will aid in patient education, research, and support for patients and their families. You can learn more and register here.

If you’re unable to make it to the premiere, don’t worry! The film will be available on streaming platforms later this year.

About PSP

PSP is a brain disorder that damages the nuclei, causing progressive issues with movement. It affects approximately three to six of every 100,000 people, although this number could be higher due to the number of people misdiagnosed with Parkinson’s. PSP effects include issues with balance and walking, falling, sleep disturbances, changes in personality and judgment, stiffness, issues with eye movement, slowed movement, alterations in mood and behavior, speech issues, eating and swallowing problems, and depression.

The exact cause of this disorder is unknown, but medical professionals do know that progressive damage to nerve cells in the brain stem is a part of it. In rare cases, PSP is inherited from parents due to a mutated MAPT gene. In order to obtain a diagnosis, doctors will look for the characteristic symptoms, perform a clinical evaluation, look at patient history, perform MRIs, and use PET scans. Treatment is symptomatic.

You can find the source article here.

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