In a recent press release, the National Hemophilia Foundation announced it has started a new campaign called “Start the Conversation” which will initiate conversations around inheritable blood disorders.
Bleeding Disorders Awareness Month (BDAM)
Bleeding Disorders Awareness Month has been observed each March since 2016, after being designated as a national health observance by the U.S. Department of Health and Human Services. BDAM aims to increase awareness of inheritable blood and bleeding disorders among the public, as well as bring them to the attention of policymakers, public authorities, industry representatives, scientists, and health professionals.
“Start the Conversation” Campaign
The campaign will run from March 1 until March 31, and it aims to showcase the multitudes of patient stories, research about bleeding disorders, and advocate for more awareness around these disorders.
This campaign is intended to be used for a wide range of people, including community members, supporters, medical professionals, and patients. This first-ever virtual community dialogue will allow people to start thoughtful and interesting conversations with each other. Furthermore, it will give people accessible facts and resources while also disqualifying any misinformation or misconceptions surrounding inheritable blood disorders.
Its Importance
Inheritable blood disorders have not received enough attention nationally, meaning the important conversations about the disorders are not being had. Therefore, the NHF starting this campaign is a step in the right direction towards prioritizing inheritable blood disorders. A number of these disorders have issues when it comes to accessible treatments, mental health, and more.
In addition, people diagnosed with a rare blood disorder will be able to spark conversations with people who have similar rare blood disorders, or even just people trying to educate themselves on the disorders.
The “Start the Conversation” campaign will be a great tool for people diagnosed with rare blood disorders and their community that supports them. It will reduce the stigma, increase awareness, and ease the pressing questions and concerns of community members.
For more information about the campaign, head here.
The National Hemophilia Foundation (NHF)
The National Hemophilia Foundation (NHF) is dedicated to finding cures for inheritable blood disorders and to addressing and preventing the complications of these disorders through research, education, and advocacy enabling people and families to thrive.
