British Researchers Announce Positive Results from New Study of Potentially Curative Treatment for Hemophilia Patients

According to a recent article in the British publication Latest Page News, doctors at the University College in London and Royal Free London believe that a ‘cure’ is possible within…

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High Rate of Bone Problems in Female Hemophilia Carriers
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High Rate of Bone Problems in Female Hemophilia Carriers

In the past, researchers have observed a relationship between hemophilia and bone-related issues. However, while this observation is helpful, there have been few studies examining the prevalence of bone problems…

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The National Hemophilia Foundation Is Highlighting Bleeding Disorders Awareness Month with New Campaign
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The National Hemophilia Foundation Is Highlighting Bleeding Disorders Awareness Month with New Campaign

In a recent press release, the National Hemophilia Foundation announced it has started a new campaign called “Start the Conversation” which will initiate conversations around inheritable blood disorders. Bleeding Disorders…

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Less Than Half of U.S. States Have a Rare Disease Advisory Council and This Needs to Change
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Less Than Half of U.S. States Have a Rare Disease Advisory Council and This Needs to Change

Guadalupe Hayes-Mota has worked for Biogen, Ultragenyx, Amgen, and GSK. He was the prior UCLA Health Director. Additionally, he is a member of the Massachusetts Rare Disease Advisory Council. He…

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PicnicHealth and Komodo Health Have Combined Their Data to Better Serve Multiple Sclerosis and Hemophilia Patients

Komodo Health and PicnicHealth have just announced that they have partnered together in effort to combine their data and better serve patients. This data will then be made accessible to…

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March is Bleeding Disorders Awareness Month: Spreading Bleeding Disorders Awareness
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March is Bleeding Disorders Awareness Month: Spreading Bleeding Disorders Awareness

March is recognized each year as Bleeding Disorders Awareness Month, an event meant to help spread awareness about bleeding disorders among the general public and in the medical community. Bleeding…

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BioMarin Holds Clinical Study to Determine Antibodies that Might Impact Gene Therapy
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BioMarin Holds Clinical Study to Determine Antibodies that Might Impact Gene Therapy

Last month, biotechnology company BioMarin sought approval for an investigational gene therapy (valoctocogene roxaparvovec) for patients with hemophilia A. However, their approval was denied. Instead, the company was told that…

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