Juvenile Male Patients with von Willebrand Disease More Likely to Experience Complications Than Female Counterparts
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Juvenile Male Patients with von Willebrand Disease More Likely to Experience Complications Than Female Counterparts

  The most common inherited bleeding disorder, von Willebrand disease, appears more likely to cause problems for juvenile males living with the disease than juvenile females, according to a study…

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This Company is Getting Behind Two New Von Willebrand Disease Clinical Trials
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This Company is Getting Behind Two New Von Willebrand Disease Clinical Trials

According to a story from BioPortfolio, the drug company Octapharma USA sponsored the 71st Bleeding Disorder Conference, which is put on by the National Hemophilia Foundation. The company is also…

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Don’t Miss VWD Connect Foundation’s First-Ever Type 3/Severe Von Willebrand Disease Patient Conference
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Don’t Miss VWD Connect Foundation’s First-Ever Type 3/Severe Von Willebrand Disease Patient Conference

Von Willebrand disease is the most common inherited blood clotting disorder that affects humans. The disorder can also be acquired. Although it is considered common, the majority of cases do…

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Secondary Long-Term Prophylaxis Shows Promise for Patients with Severe von Willebrand Disease (vWD)

A recent article in the National Hemophilia Foundation news quotes the Blood Transfusion journal's report on the results of a study conducted under the lead of Dr. Flora Peyvandi, Medical…

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Prophylaxis May Reduce the Need of Hospitalization for von Willebrand Disease Patients, Study Says
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Prophylaxis May Reduce the Need of Hospitalization for von Willebrand Disease Patients, Study Says

According to a story from the National Hemophilia Foundation, a collaborative team of researchers from the U.S. and Sweden recently announced the results of a study the indicated that a…

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The FDA Approves a Treatment for Patients with Von Willebrand Disease Undergoing Surgery
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The FDA Approves a Treatment for Patients with Von Willebrand Disease Undergoing Surgery

The US Food and Drug Administration (FDA) has just approved the drug Vonvendi for use in adult patients with von Willebrand disease who are undergoing surgery. This is an extension…

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When Routine Bruises Are Not Routine: VWD, Diabetes and Other Possible Causes
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When Routine Bruises Are Not Routine: VWD, Diabetes and Other Possible Causes

Bruises. Ouchies. Boo Boos. Whatever you call them, injuries to the skin can happen anywhere on the body and can be caused by everything from vitamin deficiencies to a rare…

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Von Willebrand Disease, the Lesser Known Cousin of Hemophilia—Learn Why
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Von Willebrand Disease, the Lesser Known Cousin of Hemophilia—Learn Why

I first became aware of the bleeding disorder hemophilia when I was in high school reading about Nicholas II, the last Russian tsar. His son had severe hemophilia B, which…

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Why are Von Willebrand Disease Peeps Thanking Vermont?
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Why are Von Willebrand Disease Peeps Thanking Vermont?

The Governor of Vermont made an official written proclamation March 3, 2017. He declared March as Bleeding Disorders Awareness Month, the state's first official observation of the cause. With this…

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Teens with Von Willebrand and Other Bleeding Disorders Take to the Runway
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Teens with Von Willebrand and Other Bleeding Disorders Take to the Runway

Twenty-three teenagers living with rare diseases worked the runway at a recent fashion show in Texas. Sixteen-year-old Maggie, living with Von Willebrand disease, was one of the models for the…

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When Things Get Tough, 11-Year-Old Girl with Sickle Cell Anemia Gets Tougher
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When Things Get Tough, 11-Year-Old Girl with Sickle Cell Anemia Gets Tougher

Really? Really. As if having one serious chronic disease isn’t enough, what makes God say, “Hmm…Let’s give this poor, innocent child, another chronic illness"?! In this case, I'm talking about…

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Look at What One Physical Therapist Wants You to Know About Blood Disorders
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Look at What One Physical Therapist Wants You to Know About Blood Disorders

When you think of a physical therapist, you typically think of a person that will help with treating injuries. Or you think of them a movement specialists. Surprisingly, physical therapists…

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March is Bleeding Disorders Awareness Month: A Primer on von Willebrand Disease
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March is Bleeding Disorders Awareness Month: A Primer on von Willebrand Disease

To read our primer on Hemophilia, click here. Pop quiz, Patient Worthy-style: What is von Willebrand Disease? And no Googling! For those who were familiar, A+! And for the rest…

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5 Bloody Amazing Things About the Bleeding Disorder Red Tie Challenge
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5 Bloody Amazing Things About the Bleeding Disorder Red Tie Challenge

Ever heard that blood is thicker than water? Not only am I sure the National Hemophilia Foundation (NHF) has heard it—they’re essentially creating a movement around it. And it’s pretty…

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