March is Bleeding Disorders Awareness Month: Spreading Bleeding Disorders Awareness
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March is Bleeding Disorders Awareness Month: Spreading Bleeding Disorders Awareness

March is recognized each year as Bleeding Disorders Awareness Month, an event meant to help spread awareness about bleeding disorders among the general public and in the medical community. Bleeding…

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Recall of Bleeding Disorder Drug Leaves Patients with Unanswered Questions
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Recall of Bleeding Disorder Drug Leaves Patients with Unanswered Questions

According to a story from hemophilia.org, the drug company Ferring Pharmaceuticals issued a recall of the nasal spray drug desmopressin (marketed as Stimate) on July 21st, 2020. This product is…

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Juvenile Male Patients with von Willebrand Disease More Likely to Experience Complications Than Female Counterparts
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Juvenile Male Patients with von Willebrand Disease More Likely to Experience Complications Than Female Counterparts

  The most common inherited bleeding disorder, von Willebrand disease, appears more likely to cause problems for juvenile males living with the disease than juvenile females, according to a study…

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Don’t Miss VWD Connect Foundation’s First-Ever Type 3/Severe Von Willebrand Disease Patient Conference
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Don’t Miss VWD Connect Foundation’s First-Ever Type 3/Severe Von Willebrand Disease Patient Conference

Von Willebrand disease is the most common inherited blood clotting disorder that affects humans. The disorder can also be acquired. Although it is considered common, the majority of cases do…

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Secondary Long-Term Prophylaxis Shows Promise for Patients with Severe von Willebrand Disease (vWD)

A recent article in the National Hemophilia Foundation news quotes the Blood Transfusion journal's report on the results of a study conducted under the lead of Dr. Flora Peyvandi, Medical…

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Prophylaxis May Reduce the Need of Hospitalization for von Willebrand Disease Patients, Study Says
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Prophylaxis May Reduce the Need of Hospitalization for von Willebrand Disease Patients, Study Says

According to a story from the National Hemophilia Foundation, a collaborative team of researchers from the U.S. and Sweden recently announced the results of a study the indicated that a…

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Von Willebrand Disease, the Lesser Known Cousin of Hemophilia—Learn Why
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Von Willebrand Disease, the Lesser Known Cousin of Hemophilia—Learn Why

I first became aware of the bleeding disorder hemophilia when I was in high school reading about Nicholas II, the last Russian tsar. His son had severe hemophilia B, which…

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Teens with Von Willebrand and Other Bleeding Disorders Take to the Runway
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Teens with Von Willebrand and Other Bleeding Disorders Take to the Runway

Twenty-three teenagers living with rare diseases worked the runway at a recent fashion show in Texas. Sixteen-year-old Maggie, living with Von Willebrand disease, was one of the models for the…

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When Things Get Tough, 11-Year-Old Girl with Sickle Cell Anemia Gets Tougher
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When Things Get Tough, 11-Year-Old Girl with Sickle Cell Anemia Gets Tougher

Really? Really. As if having one serious chronic disease isn’t enough, what makes God say, “Hmm…Let’s give this poor, innocent child, another chronic illness"?! In this case, I'm talking about…

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Look at What One Physical Therapist Wants You to Know About Blood Disorders
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Look at What One Physical Therapist Wants You to Know About Blood Disorders

When you think of a physical therapist, you typically think of a person that will help with treating injuries. Or you think of them a movement specialists. Surprisingly, physical therapists…

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March is Bleeding Disorders Awareness Month: A Primer on von Willebrand Disease
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March is Bleeding Disorders Awareness Month: A Primer on von Willebrand Disease

To read our primer on Hemophilia, click here. Pop quiz, Patient Worthy-style: What is von Willebrand Disease? And no Googling! For those who were familiar, A+! And for the rest…

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