Spread Awareness for Tourette Syndrome Awareness Month

Tourette Syndrome affects one million Americans. 2022 is the Tourette Association of America’s 50th Anniversary, and to celebrate, you can get involved in Tourette Syndrome Awareness Month from May 15th to June 15th.

The Tourette Association of America (TAA) was founded in 1972 and has 31 chapters. It provides support to patients and their families and promotes awareness. The TAA has invested more than $22 million to fund 450 research projects in sixteen countries.

The TAA has trained over one thousand Youth Ambassadors. Team members are trained to provide education about Tourette syndrome to their peers and adults, as well as government officials.

Key Facts

  • Tourette syndrome, a neurodevelopmental disorder, is mostly characterized by vocal and motor tics.
  • It is estimated that one child out of every 160 children in the U.S. ages 5 through 17 has TS.
  • It is also common for TS patients to have a co-occurring disorder such as ADHD or OCD. Although as of yet TS cannot be cured, patients do have treatment options.

TAA’s 2022 Impact Survey

The TAA issued a statement in effect saying that the survey results were disturbing yet not surprising. It only empowered the members to raise the level of awareness about Tourette syndrome.

A total of 1,194 people participated in the survey. These statistics include 601 adults with TS and 593 adults completing the survey on behalf of a child with TS.

Adults reporting for children with TS mentioned, among other issues, the children’s physical pain and the emotional pain of discrimination. A large percentage of adults also reported physical pain and isolation due to TS. The adults mentioned alcohol consumption to cope with the disorder.

The study brought to light the fact that many adults, as well as children, have thought of suicide at various times.

The June 12th Marathon

The TAA anticipates a good turnout for its marathon at Astoria Park in New York. But anyone wishing to show support and awareness for TS can attend through virtual registration. Remember that you can bike, run, or walk anywhere for Tourette.

The TAA urges you to get in touch with your local chapter and get involved. Click here for more info on how to participate in the awareness month.

Rose Duesterwald

Rose Duesterwald

Rose became acquainted with Patient Worthy after her husband was diagnosed with Acute Myeloid Leukemia (AML) six years ago. During this period of partial remission, Rose researched investigational drugs to be prepared in the event of a relapse. Her husband died February 12, 2021 with a rare and unexplained occurrence of liver cancer possibly unrelated to AML.

Share this post