Rose became acquainted with Patient Worthy after her husband was diagnosed with Acute Myeloid Leukemia four years ago. He was treated with a methylating agent While he was being treated with a hypomethylating agent, Rose researched investigational drugs being developed to treat relapsed/refractory AML.

    The Today Show: Alan Jackson, Legendary Country Singer, Reveals His Ten Years with Charcot-Marie Tooth Disease (CMT)

    Although Jackson, age 62, has had CMT for ten years, he only divulged his illness this month. According to an article on eathis.com, Jackson chose a recently aired segment of…

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    The Unusual Clinical Profile of Three Brothers With Cystic Fibrosis Warrants a New Look at Standard CF Care
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    The Unusual Clinical Profile of Three Brothers With Cystic Fibrosis Warrants a New Look at Standard CF Care

      Science Direct recently published a Respiratory Medicine Case Report that may impact future Cystic Fibrosis (CF) treatment. The case involves adult brothers herein referred to for purposes of this…

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    A Study of Chronic Fatigue Syndrome and Its Relationship to Enteroviruses

     Frontiers In Medicine recently published a critical review by Maureen Hanson and Adam O’Neal of Cornell University’s Department of Biology and Genetics. The authors searched for the cause of myalgic…

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    Twenty-two Months Old With a Rare Disease and COVID-19 Then a “Lung Washing”

    According to a recent article in the International Business Times, a twenty-two-month-old girl living in Odisha, India was diagnosed with pulmonary alveolar proteinosis. The disease causes respiration difficulties due to…

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    Barth Syndrome Chairman Appeals to the FDA For Appropriate Guidelines When Approving Drugs for Ultra-Rare Diseases

    According to an article submitted to StatNews by members of the Barth Syndrome Foundation, the FDA approved the drug Aduhelm in accordance with its accelerated approval program. Although the treatment…

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    CRISPR-Cas9’s Latest Genome Editing Feat: Stem Cells That Deliver Drugs in Response to Inflammation
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    CRISPR-Cas9’s Latest Genome Editing Feat: Stem Cells That Deliver Drugs in Response to Inflammation

      Genetic Engineering and Biotechnology News recently published an article describing how engineered cells were implanted into rheumatoid mouse models. The cells used in the study were able to sense…

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    A Mother’s Recollection of a UCSF Medical Center Cancer Ward and its Compassionate Nurses
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    A Mother’s Recollection of a UCSF Medical Center Cancer Ward and its Compassionate Nurses

    Steven Rodriguez was nineteen years old attending college in California when he began to have severe headaches. A recent article from the UCSF Science Center gives an account of Steven’s…

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    Islamabad, Pakistan: Aslan Needed Money for Rare Surgery for Heterotaxy and Twitter Came to the Rescue

      Namrah and Aslan Jalil, residents of Islamabad in Pakistan, recently interviewed with VICE World News describing their struggle to arrange for their four-year-old son, Aslan, to be brought to…

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    Compassion Corner: This Patient Didn’t Let a Hurtful Incident Ruin Her Appreciation for the Compassionate Care She Received From Other Nurses
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    Compassion Corner: This Patient Didn’t Let a Hurtful Incident Ruin Her Appreciation for the Compassionate Care She Received From Other Nurses

    Compassion [kuhm-pash-uhn] noun A feeling of deep sympathy and sorrow for another who is stricken by misfortune, accompanied by a strong desire to alleviate the suffering. Compassion Corner is a…

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    A Case History of a Rheumatologist With Relapsed Leukemia and Triple-Negative Breast Cancer
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    A Case History of a Rheumatologist With Relapsed Leukemia and Triple-Negative Breast Cancer

    Breast cancer is a result of a cell in the breast mutating and multiplying rapidly. There are over 275,000 occurrences of breast cancer in the U.S. each year. However, new…

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    Acute Myeloid Leukemia (AML): The Fine Line Between Proliferation of AML Cells and Death Of AML Cells
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    Acute Myeloid Leukemia (AML): The Fine Line Between Proliferation of AML Cells and Death Of AML Cells

    According to a recent article in MedicalXpress, researchers led by professor of medicine Dr. Jing Chen uncovered new data showing how acute myeloid leukemia (AML) becomes active and progresses. The…

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