Rose became acquainted with Patient Worthy after her husband was diagnosed with Acute Myeloid Leukemia (AML) six years ago. During this period of partial remission, Rose researched investigational drugs to be prepared in the event of a relapse. Her husband died February 12, 2021 with a rare and unexplained occurrence of liver cancer possibly unrelated to AML.

    Ryan’s Life Changed from being a Fire Fighter to Being Diagnosed with Creutzfeldt-Jakob Disease

    Dozens of Ryan Wilson Palmer’s family and friends recently celebrated an early birthday after he received a devastating diagnosis of Creutzfeldt-Jakob disease. A few months ago 49-year-old Ryan Palmer of…

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    Beam Therapeutics Announces a First in Human Testing of Gene Editing Medicine for Cancer  

    Beam Therapeutics (Beam) has developed a technique called base editing. The treatment is called BEAM 201. The first patient has been dosed according to a recent statement by the company…

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    Merkel Cell Carcinoma Has Taken the Life of Jimmy Buffett After Fending Off Cancer for Four Years
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    Merkel Cell Carcinoma Has Taken the Life of Jimmy Buffett After Fending Off Cancer for Four Years

      Jimmy Buffett survived a 1994 plane crash that was the inspiration for his song “Live Like It’s Your Last Day." According to an obituary on his website, Jimmy, 76,…

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    Patients and Doctors Are Pressuring Health Insurance Companies Online in Order to Receive Proper Treatment
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    Patients and Doctors Are Pressuring Health Insurance Companies Online in Order to Receive Proper Treatment

      Social media has become a vehicle for customer complaints and the companies are listening. Estimates are that almost two-thirds of dissatisfied customers have received a response to their online…

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    Making a Major Impact on B Cell Cancers
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    Making a Major Impact on B Cell Cancers

      Accutar Biotechnology, Cranbury, New Jersey recently announced via BioSpace that dosing has begun with the first patient enrolled in the Phase 1 trial of AC0676 a chimeric degrader molecule…

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    Enterome Announces Positive Preliminary Trial Data for Non-Hodgkin Lymphoma
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    Enterome Announces Positive Preliminary Trial Data for Non-Hodgkin Lymphoma

      Enterome presented its findings to the 17th International Conference on Malignant Lymphoma (ICML) in June of this year. As reported in the GlobeNewswire, the company demonstrated that E02463 together…

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    A Preview of Potentially Historic FDA Approvals for 2023
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    A Preview of Potentially Historic FDA Approvals for 2023

      The later part of 2023 will see decisions on drugs in four areas such as advanced melanoma, sickle cell disease, Alzheimer’s disease, and depression. BioSpace shines the spotlight on…

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    Kona Nurse with Charcot-Marie-Tooth Disease Will Circumnavigate the Globe Solo: Part 2
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    Kona Nurse with Charcot-Marie-Tooth Disease Will Circumnavigate the Globe Solo: Part 2

    How Jenny’s Voyage Was Salvaged BigIslandNow recently carried the story of how Jenny’s dream was almost shattered when she was sold a $10,000 used engine rather than an $8,000 new…

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    Kona Nurse with Charcot-Marie-Tooth Disease Will Circumnavigate the Globe Solo: Part 1
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    Kona Nurse with Charcot-Marie-Tooth Disease Will Circumnavigate the Globe Solo: Part 1

        Kona nurse Jenny Decker, 38, left Honokōhau Small Boat Harbor, Kailua-in Hawaii on June 28, 2023. A recent article in BigIslandNow announces that Jenny is ready to circumnavigate…

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