Rose became acquainted with Patient Worthy after her husband was diagnosed with Acute Myeloid Leukemia four years ago. He was treated with a methylating agent While he was being treated with a hypomethylating agent, Rose researched investigational drugs being developed to treat relapsed/refractory AML.

    Scientists Discover That a Blood Pressure Medication Can Increase Immune-Boosting Cells
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    Scientists Discover That a Blood Pressure Medication Can Increase Immune-Boosting Cells

      According to a recent article in Genetic Engineering News, findings by scientists at the University of Boston’s School of Medicine and Massachusetts General Hospital (MGH) have uncovered two plausible…

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    The Weather Can Change in an Hour, But a Terminal Cancer Diagnosis Changes Your Life In Minutes

    The symptoms of terminal pancreatic cancer are subtle. The disease is usually not diagnosed until it has substantially progressed, leaving a dismal five-year overall survival of five to ten percent.…

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    Is There a Right or Wrong in the Debate Between Patients and Manufacturers to Release Drugs Through Compassionate Use?
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    Is There a Right or Wrong in the Debate Between Patients and Manufacturers to Release Drugs Through Compassionate Use?

      Following several Patient Worthy articles on the subject earlier this year, Fierce Biotech recently published news that Biogen is preparing to release the Phase III VALOR trial drug, tofersen,…

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    If It Looks and Acts Like the Flu but Isn’t the Flu, Then What Is It?
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    If It Looks and Acts Like the Flu but Isn’t the Flu, Then What Is It?

    This question is what the doctors at Massachusetts’ Cambridge Hospital were trying to determine. According to a recent article in the New York Times, a twenty-two-year-old man was rushed to…

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    These Words Are Not Helpful: “Your Test Results are Negative. You Are No Doubt Imagining Most of Your Pain”
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    These Words Are Not Helpful: “Your Test Results are Negative. You Are No Doubt Imagining Most of Your Pain”

      The patient sitting in front of this physician was later diagnosed with severe chronic fatigue syndrome (myalgic encephalomyelitis or ME/CFS). But for now, the patient had to endure humiliation…

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    Compassion Corner: Being Human Does Not Take Much Effort; It Only Takes Fifty-six Seconds
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    Compassion Corner: Being Human Does Not Take Much Effort; It Only Takes Fifty-six Seconds

      Compassion [kuhm-pash-uhn] noun A feeling of deep sympathy and sorrow for another who is stricken by misfortune, accompanied by a strong desire to alleviate the suffering. Compassion Corner is…

    Continue Reading Compassion Corner: Being Human Does Not Take Much Effort; It Only Takes Fifty-six Seconds
    NYUAD Researchers Identify the Code That Regulates Liver Regrowth: A New Form of Regenerative Medicine May Follow
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    NYUAD Researchers Identify the Code That Regulates Liver Regrowth: A New Form of Regenerative Medicine May Follow

      Researchers at NYU Abu Dhabi (NYUAD) have discovered the code that is associated with the liver’s genome (complete set of DNA) and its ability to regenerate. According to a…

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    The First Patient in China to be Accepted Under its 2019 Compassionate Use Policy

    Beijing, China: According to an article in a sister publication of Sixth Tone, a woman living in China who has been treated during the past fourteen years for paroxysmal nocturnal…

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    Study: The Effect of Patient Support Groups on Pulmonary Hypertension Patients and their Caregivers
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    Study: The Effect of Patient Support Groups on Pulmonary Hypertension Patients and their Caregivers

    There are seven major categories of support groups including mental and emotional support, addiction, bereavement, or medical support. The latter groups are designed for patients according to a specific disease.…

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    For People With a Rare Disease, This Patient Recommends Adding a PCP to Your List of Doctors
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    For People With a Rare Disease, This Patient Recommends Adding a PCP to Your List of Doctors

      Claire Richmond can be considered a very experienced patient. It took Claire nineteen years to receive a diagnosis for her rare disease. During that time, she had been dismissed…

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    Compassion Corner: Type 1 Diabetes Patient Credits Sansum Clinic with ‘A Lifetime of Compassionate Care’
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    Compassion Corner: Type 1 Diabetes Patient Credits Sansum Clinic with ‘A Lifetime of Compassionate Care’

      Compassion [kuhm-pash-uhn] noun A feeling of deep sympathy and sorrow for another who is stricken by misfortune, accompanied by a strong desire to alleviate the suffering. Compassion Corner is…

    Continue Reading Compassion Corner: Type 1 Diabetes Patient Credits Sansum Clinic with ‘A Lifetime of Compassionate Care’
    Compassion Corner: Compassion is Not Just About Caring, It’s About Taking That Extra Step. This Patient’s Stage 3 Cancer Could Have Been Avoided
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    Compassion Corner: Compassion is Not Just About Caring, It’s About Taking That Extra Step. This Patient’s Stage 3 Cancer Could Have Been Avoided

    Compassion [kuhm-pash-uhn] noun A feeling of deep sympathy and sorrow for another who is stricken by misfortune, accompanied by a strong desire to alleviate the suffering. Compassion Corner is a…

    Continue Reading Compassion Corner: Compassion is Not Just About Caring, It’s About Taking That Extra Step. This Patient’s Stage 3 Cancer Could Have Been Avoided