We are excited to announce that Patient Worthy’s award-winning podcast “Wait, How Do You Spell That? A Rare Disease Podcast” is back with a new episode. This week, Colby is sitting down with Kathi and Dave Herzog. Kathi was diagnosed earlier this year with Alzheimer’s. While this is not a rare disease, its characteristics have helped contribute to the research and treatment development for a number of rare illnesses that have a neurodegenerative trajectory similar to Alzheimer’s. Dave, Kathi’s husband, also joins to discuss the caregiver perspective.
You can expect regular episode releases to return for the foreseeable future.
Check out the episode below:
If you want to save this one for later, you can also listen to the episode at this link.
About Alzheimer’s Disease
Alzheimer’s disease, often just called Alzheimer’s, is a neurodegenerative illness affecting the brain that is primarily characterized by memory loss and dementia, which progressively worsens over time. Alzheimer’s disease is the leading cause of dementia around the world, being linked to around 70% of cases. The cause of this disease isn’t clear, but a family history of the disease, particularly in the patient’s parents, appears to be the dominant risk factor. Other possible factors may include high blood pressure, depression, and head injuries. Memory decline is often the first recognized symptom; others include mood swings, disorientation, and difficulty speaking; these symptoms worsen over time to the extent that the person cannot function in daily life; paranoia, aggression, and then apathy are common. Treatment is symptomatic and supportive, and no known medications can halt disease progression. Life expectancy following diagnosis is between three to nine years. To learn more about Alzheimer’s disease, click here.
Chronic conditions and rare diseases don’t discriminate. Patient Worthy and its partners are interested in amplifying the voices of those from all identities and backgrounds. If you have a journey to share, reach out to learn more about how your voice can help spread awareness and inspire individuals from all walks of life.
