New Podcast Episode: The Unmet Need In Rare Disease, Featuring Dr. Emil Kakkis of Ultragenyx

We are excited to announce that Patient Worthy’s award-winning podcast “Wait, How Do You Spell That? A Rare Disease Podcast” is back with a new episode. This week, Colby is sitting down with Dr. Emil Kakkis, a physician and scientist who has spent more than 30 years helping to advance research, treatment and policy for rare disease patients. He is also the founder of both the EveryLife Foundation for Rare Diseases and Ultragenyx, a life sciences company dedicated to developing innovative treatments for rare and ultra-rare diseases.

Check out the episode below:

If you want to save this one for later, you can also listen to the episode at this link. Or, you can find the episode on Apple Podcasts, Google Podcasts, Spotify and Amazon.

If you’d like to pick up a copy of Dr. Kakkis’ book, you can find it at Impositivity Media or at Amazon.

You can learn more about Rare Disease Week here.

Editor’s Note: Chronic conditions and rare diseases don’t discriminate, Patient Worthy and its partners are interested in amplifying the voices of those from all identities and backgrounds. If you have a journey to share, click here to learn more about how your voice can help spread awareness and inspire individuals from all walks of life.


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