Shedding Light on Narcolepsy for Sleep Awareness Week 2024

Editor’s Note: Chronic conditions and rare diseases don’t discriminate, Patient Worthy and its partners are interested in amplifying the voices of those from all identities and backgrounds. If you have a journey to share, click here to learn more about how your voice can help spread awareness and inspire individuals from all walks of life.

 

It’s time to be your best slept self. The National Sleep Foundation proudly proclaims this motto as a leading charge during Sleep Awareness Week 2024, taking place from March 10-15.

Sleep Awareness Week illuminates the significance of restful slumber and its profound implications for overall wellbeing. How we sleep plays a role in our health. This year, the National Sleep Foundation’s Sleep in America Poll found a strong correlation between teens’ sleep health and mental health. Through this first-of-its-kind survey, the National Sleep Foundation discovered that:

  • 80% of teenagers do not get enough sleep.
  • Approximately 75% of teenagers say that their mental and emotional health is worse when they don’t get enough sleep.
  • For teenagers who have difficulty sleeping at least two or more nights each week, they often experience higher rates of depression.

Narcolepsy, Sleep Health, and Detrimental Impacts

These findings are particularly interesting when considering conditions like narcolepsy, a neurological disorder which causes a dysregulated sleep-wake cycle. People with narcolepsy experience excessive daytime sleepiness and may fall asleep suddenly or unexpectedly. Some people with narcolepsy also experience cataplexy, a sudden loss of muscle tone triggered by strong emotions like laughter or excitement.

Often existing on the periphery of sleep health advocacy efforts, narcolepsy has its moment in the spotlight during Sleep Awareness Week; we must emphasize its relevance in conversations surrounding sleep awareness. Narcolepsy and cataplexy can affect people of all ages. However, symptom onset most often occurs in adolescence or young adulthood – even though this condition may go undiagnosed for years after.

In teenagers, narcolepsy can impact academic performance, social interactions, and overall mental and physical health. Excessive daytime sleepiness makes it hard to stay awake and alert, which can make it harder to keep up in classes. For these teenagers, it can be challenging to attend social gatherings or extracurricular activities, making it more difficult to form friendships and relationships. For those with narcolepsy with cataplexy, cataplectic episodes can also affect self-esteem and confidence. The emotional aspects of narcolepsy, including isolation and depression, can be compounded by disrupted sleep patterns.

Early detection and intervention can help teenagers with narcolepsy manage their condition and live a more fulfilling, restful life. It is crucial to extend our dialogue on sleep health to include individuals navigating narcolepsy. For tips on sleep health and potential interventions for those with narcolepsy, check out this helpful article from the National Sleep Foundation.

Ultimately, Sleep Awareness Week not only amplifies discussions on sleep health but allows the voices of people with narcolepsy to integrate their experiences into the conversation with understanding and compassion.

Editor’s Note: Chronic conditions and rare diseases don’t discriminate, Patient Worthy and its partners are interested in amplifying the voices of those from all identities and backgrounds. If you have a journey to share, click here to learn more about how your voice can help spread awareness and inspire individuals from all walks of life.