The Sleepy Road to Diagnosis and Deprivation: A Narcolepsy Patient Story, Part 2
This is part two of the story, click here to read part one After searching for a new neurologist, we found one only 30 mins away that was willing…
The Sleepy Road to Diagnosis and Deprivation: A Narcolepsy Patient Story, Part 1
I want to start off by saying that the intention behind my words are not to convey or express any sort of anger, hatred, or resentment. I am choosing to…
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A Phase 3 Narcolepsy Clinical Trial Has Completed Enrollment
According to a story from Biotech 365, the biopharmaceutical company Avadel Pharmaceuticals plc recently announced that it has completed enrollment for its phase 3 clinical trial. This trial will test…
Study: New Treatment to Help with Daytime Sleepiness from Narcolepsy
Narcolepsy is characterized by drowsiness, often during the daytime. This is a symptom that greatly affects the lives of those with narcolepsy, and for a long time no FDA…
Phase 2 Trial for Narcolepsy has Completed Enrollment
Narcolepsy is a rare neurological disease that affects the sleep cycle. Symptoms include sleep paralysis, excessive daytime sleepiness, disrupted nighttime sleep, hypnagogic hallucinations, and, for around 70% of patients, cataplexy.…
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The FDA Approves a New Treatment for Narcolepsy
According to a story from PR Newswire, the biopharmaceutical company Harmony Biosciences, LLC recently announced that the US Food and Drug Administration (FDA) has approved the company's drug pitolisant (marketed…
The Struggles of being a Rare Disease Patient in China
The State of Rare Diseases in China The Illness Challenge Foundation (ICF) is an organization devoted to easing the burdens that rare disease patients living in China face. They accomplish this…
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Recent Discovery Suggests an Autoimmune Origin for Narcolepsy
According to a story from Neuroscience News, a team of researchers based out of the University of Copenhagen have made an intriguing discovery that could give new insight into the…
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Theranexus Releases Early Data from its Narcolepsy Clinical Trial
According to a story from finanznachrichten.de, the biopharmaceutical company Theranexus has recently released preliminary results from a Phase II clinical trial that is testing the company's experimental product THN102. This…
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Study Confirms Some Narcolepsy Diagnoses Can be Linked to the Flu
Emmanuel Mignot, who is the director of the Stanford Center for Sleep Sciences and Medicine has long believed that some onsets of Narcolepsy could be caused by a confused autoimmune response in…
Phase 2 Trial Results for New Potential Narcolepsy Treatment Will be Here Soon!
Narcolepsy and Cataplexy Narcolepsy is a neurological condition that results in a malfunctioning sleep-wake cycle. It affects approximately 185,000 individuals in the United States alone. Some of the most common…
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Research Suggests There May be a Link Between Daytime Sleepiness and Attention
A study has found that daytime sleepiness and attention may be correlated in people with narcolepsy and hypersomnia, with patients who self-report feeling more sleepy also being more likely to…
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A New Pediatric Treatment Approved for Cataplexy!
The FDA has approved a new narcolepsy and cataplexy treatment for pediatric patients! Xyrem is a drug used to control narcolepsy symptoms including cataplexy and excessive daytime sleepiness (EDS). It…
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The FDA Has Granted Orphan Status to a Potential Narcolepsy Drug
The United States Food and Drug Administration has awarded Orphan Drug Designation to an investigational drug for narcolepsy, and there are plans to carry out a Phase 2 study to…
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Researchers are Working to Understand the Causes of Narcolepsy
A new study explored the mechanisms underlying narcolepsy, a rare sleep disorder. The condition has previously been linked to reduced levels of a neurotransmitter called hypocretin, and the recent study…
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Treatment for Cataplexy and Narcolepsy Gets Designations From the FDA
According to a story from kait8.com, the company Harmony Biosciences, Inc., has recently announced that the U.S. FDA has given Fast Track and Breakthrough Therapy designations for its experimental therapy…
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Narcolepsy: 10 Things You Might Not Know
Narcolepsy is a rare disease subject to many misperceptions and false assumptions. All of that misinformation belies the fact that narcolepsy is a serious neurological disorder, with symptoms that can…
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A Test Used to Diagnose Narcolepsy is Found to be Unreliable
A new study looking at a test used to diagnose narcolepsy has found that it often produces inconsistent results for the same patients, reports Sleep Review. This highlights a current…
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The Science of Sleep: Things you Can Do To Raise Awareness for Sleep Disorders
For so many of us, a good night's sleep is a refuge; from our long hectic days, from our piling problems, or even from the stresses of managing our rare…
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Rare Disease Sufferers At Greater Risk Of Anxiety
According to a new study, people who suffer from rare disease are more prone to suffer from levels of anxiety, depression, pain and fatigue. The findings are proof that special…
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An Experimental Narcolepsy Treatment Was Just Granted Orphan Drug Status
According to an article from FinancialBuzz, the pharmaceutical company Avadel announced that its product FT 218 has been granted orphan drug status by the Food and Drug Administration (FDA) as…
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How the “Lazy Teenager” Stereotype Masked a Rare Disease
Being a teenager is inherently difficult. There's no real way to make it to your twenties without feeling tired, cranky, and misunderstood by everyone around you. It's even harder when…
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Is Multiple Sclerosis Challenging Your Ability to Get Your Zs?
Prepping for bedtime in my house is like going into battle. The children are provided the first warning around 7:30 p.m. From that moment forward, everything revolves around the mission-critical…
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The Ugly Stigma Surrounding Narcolepsy
When you need help with a problem, where do you turn? Many people these days turn immediately to the internet. From Googling to settle a bet to researching a doctoral…
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Doggie Drool(ing) over Narcolepsy Research Results
In my home, everything is shared with our dogs. When eggs are made for breakfast, the dog’s eggs are served scrambled. When it’s time to exercise, we all head outside…
