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Daily Archives: September 23, 2025

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Understanding Genetic Testing and Counseling for Neurofibromatosis Type 1

Understanding Genetic Testing and Counseling for Neurofibromatosis Type 1

  • Post author:Bree Clare
  • Post published:September 23, 2025
  • Post category:Neurofibromatosis Type 1

Neurofibromatosis Type 1 (NF1) is a genetic disorder diagnosed primarily through a set of clinical criteria established by the National Institutes of Health (NIH). Typically, a clinical diagnosis of NF1…

Continue Reading Understanding Genetic Testing and Counseling for Neurofibromatosis Type 1
Opinion: Use of Basket Trials to Solve Sleep Problems in Patients with Rare Diseases

Opinion: Use of Basket Trials to Solve Sleep Problems in Patients with Rare Diseases

  • Post author:Bree Clare
  • Post published:September 23, 2025
  • Post category:Rare Disease

In our third installment from our series of reports provided by our partner TREND Community, we are bringing you several reports that analyze the effects of sleep disorders.  This week…

Continue Reading Opinion: Use of Basket Trials to Solve Sleep Problems in Patients with Rare Diseases
All About Genetic Sequencing

All About Genetic Sequencing

  • Post author:PW Collaborator
  • Post published:September 23, 2025
  • Post category:Genetic Testing

Editor's Note: Patient Worthy is honored to bring you this article, shared with us by our friends at the Tess Research Foundation. To see this article in its original state,…

Continue Reading All About Genetic Sequencing
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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