Happy Rare Disease Week friends!
This week we have an exciting article on the first day of Rare Disease Week on Capitol Hill (though technically, the first day was at the NIH). The energy there was positive and hopeful for the future of rare disease!
We are also highlighting Narcolepsy this week and how fitness and family helped this one woman with cystinosis!
Sit back and enjoy this week’s Editor’s Choice!
[one_half]
Rare Disease Day NIH Just Wrapped Up!
Rare Disease Day NIH was amazing. From key people in congress, to scientists and non-profit organizations, the speakers were encouraging and passionate about advancing the world of rare disease.
Stay tuned for more reporting from this week!
[/one_half_last] [one_half]
Narcolepsy 101: For the Newly Diagnosed
Just diagnosed with narcolepsy? This quick article will fill you in on all the “need-to-knows” of this chronic illness.
[/one_half_last] [one_half]
The Paleo Diet and Narcolepsy: What You Need to Know
Doctoral candidate Christina Graves went gluten-free to help with her narcolepsy symptoms.
But then, when her symptoms came back, she implemented aspects of the Paleo diet and found great success! Read more to see if this lifestyle can help you.
[/one_half_last] [one_half]
Fitness and Family Help One Woman Overcome Cystinosis
This woman’s dedication to fitness helped a lot of aspects of cystinosis…
Including when she had to go on dialysis in preparation for a kidney transplant!
[/one_half_last]
