Happy Independence Day Weekend!
As the firework shows wind down, we want to wrap up the week with three great contributor stories, and one research update. First, we have some words of insight and empathy from PW contributor, Tom Seaman. Next, we have a story from Taylor Kane, a young adult advocating for change, for ALD awareness, and for recognition of the symptoms that female “carriers” of X-linked diseases face. We also have a dysautonomia journey from PW contributor Kerry Hussey, and study results relating to cerebral palsy.
Sit back and enjoy this week’s Editor’s Choice.
How You Look is Not a Measure for How You Feel
PW Contributor Tom Seaman writes about his struggle with dystonia, and the misconceptions our society hold about illness.
Check out his take here.
Growing Up as a Rare Disease Advocate
PW Contributor Taylor Kane tells her personal story of the loss that led her to rare disease advocacy.
Read about it here.
Spastic Cerebral Palsy Can be Identified With DNA Patterns in Blood Cells, Study Says
One fascinating study could lead to more insight about spastic cerebral palsy.
Read about it here.
My Dysautonomia Story: Kerry Hussey
PW Contributor Kerry started showing symptoms when she was 13 years old. It took 15 years for her to even find a diagnosis.
Check out her story here.
