Recent Discovery Could Lead to New Treatment Approach for Renal Cell Carcinoma

According to a story from Science Daily, researchers have discovered a mechanism that drives the development of renal cell carcinoma. This mechanism could lead to new therapeutic approaches that take…

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A Girl From New Zealand Died From Complex Regional Pain Syndrome, and Her Family Wants Answers
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A Girl From New Zealand Died From Complex Regional Pain Syndrome, and Her Family Wants Answers

According to a story from the Sydney Morning Herald, Hayley Wyatt appeared to be calling for her mother in her final moments, but there was nothing anyone in her family…

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New Treatment for Pheochromocytoma and Paraganglioma Approved by the FDA
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New Treatment for Pheochromocytoma and Paraganglioma Approved by the FDA

According to a story from globenewswire.com, the company Progenic Pharmaceuticals recently reported the the U.S. Food and Drug Administration has recently approved the company's product iobenguane I 131 (AZEDRA). This…

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Researchers May Have Found New Biomarkers For Charcot-Marie-Tooth Disease Type 2
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Researchers May Have Found New Biomarkers For Charcot-Marie-Tooth Disease Type 2

According to a story from Charcot-Marie-Tooth News, a recent study suggests that changes in the levels of two proteins in the body could serve as biomarkers to indicate the progression…

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Tauopathy Fruit Fly Model Reveals Abnormal Genetic Activity Relevant to Neurodegenerative Disease
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Tauopathy Fruit Fly Model Reveals Abnormal Genetic Activity Relevant to Neurodegenerative Disease

According to a public release from University of Texas Health Center at San Antonio on eurekalert.org, research using fruit fly tauopathy disease models has revealed a genetic "copy-paste" activity that…

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The Bleeding Edge: A Documentary Investigates the Safety of Medical Devices
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The Bleeding Edge: A Documentary Investigates the Safety of Medical Devices

The documentary The Bleeding Edge has just been made available on Netflix in the US and UK (27th July 2018). Described by Netflix as “controversial”, the documentary explores the impact…

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Jon’s Adrenoleukodystrophy Journey
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Jon’s Adrenoleukodystrophy Journey

I met Jon at the 2018 United Leukodystrophy Foundation Conference and had the privilege of learning his and his family's story. Jon was born in Wisconsin in 1992, joining the…

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Results From Studies of an Experimental Drug for Chronic Kidney Disease Have Been Announced

Results from two studies looking at the effects of an experimental drug (bardoxolone) on kidney function in patients with chronic kidney disease (CKD) have been released. One of the studies…

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Could This Mouth Swab Save Lives? Genepath Test Diagnosis Krabbe Disease and Much More
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Could This Mouth Swab Save Lives? Genepath Test Diagnosis Krabbe Disease and Much More

Ashley Wibberly’s son Levi was born in September of 2013 and lived for just 20 months with Krabbe disease. Ashley couldn’t have seen it coming. Now, however, a new test…

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CurePSP Uses Venture Grants to Fund Four Progressive Supranuclear Palsy Studies
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CurePSP Uses Venture Grants to Fund Four Progressive Supranuclear Palsy Studies

According to a story from Business Wire, the non-profit foundation CurePSP has agreed to allocate funding for four venture grants. The funding is worth over $300,000 and will be directed…

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New Guidelines Cite the Need for Better Support for Complex Regional Pain Syndrome Patients
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New Guidelines Cite the Need for Better Support for Complex Regional Pain Syndrome Patients

According to a story from the Royal College of Physicians, the organization has chosen to release new guidelines regarding the treatment of patients with complex regional pain syndrome, a potentially…

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