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Neurofibromatosis

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Brazilian Woman with Thousands of Body Tumors Leads Normal Life
Source: Pixabay

Brazilian Woman with Thousands of Body Tumors Leads Normal Life

  • Post author:Andres Rovira
  • Post published:December 5, 2017
  • Post category:Neurofibromatosis/Rare Disease

Sandra De Santos has thousands of bubble-like tumors on her body due to a rare disease called neurofibromatosis type-1. It's a hard life, but she has spoken out proudly about…

Continue Reading Brazilian Woman with Thousands of Body Tumors Leads Normal Life
Girl with Neurofibromatosis Wants You to Send Birthday Love
Source: Pixabay

Girl with Neurofibromatosis Wants You to Send Birthday Love

  • Post author:Andres Rovira
  • Post published:November 27, 2017
  • Post category:Neurofibromatosis/Rare Disease

Jessica Brown is gearing up to turn 11 years old on December 20th, and her mother, Jemma, is urging people to show her some birthday love. Jessica suffers from neurofibromatosis,…

Continue Reading Girl with Neurofibromatosis Wants You to Send Birthday Love
Former ‘Jersey Boy’ Champion for Neurofibromatosis
Source: Pixabay

Former ‘Jersey Boy’ Champion for Neurofibromatosis

  • Post author:Andres Rovira
  • Post published:November 6, 2017
  • Post category:Neurofibromatosis

Former Jersey Boys star Jeff Leibow, organized his first Neurofibromatosis Hope benefit concert in Las Vegas in 2011. His hope was to make it an annual event that would go…

Continue Reading Former ‘Jersey Boy’ Champion for Neurofibromatosis
When Skin Spots Turn Out to be Rare Disease
Source: Pixabay

When Skin Spots Turn Out to be Rare Disease

  • Post author:Andres Rovira
  • Post published:October 27, 2017
  • Post category:Neurofibromatosis/Rare Disease

Our bodies are complex and unpredictable machines. We can try our best to keep them healthy, but sometimes nature does its work, resulting in something we never could have planned…

Continue Reading When Skin Spots Turn Out to be Rare Disease
This Cool Chick’s Technicolor Sock Collection Helps Young Cancer Patients
Source: Pixabay

This Cool Chick’s Technicolor Sock Collection Helps Young Cancer Patients

  • Post author:Andres Rovira
  • Post published:September 28, 2017
  • Post category:Neurofibromatosis

In Hartford Connecticut, 12-year-old Emma Becker has been fighting the brave fight against cancer for the last four years. Her condition: Neurofibromatosis, a condition that causes growths of tumors to…

Continue Reading This Cool Chick’s Technicolor Sock Collection Helps Young Cancer Patients
SpringWorks Therapeutics Beefs Up Programs with Handsome Funding
luvqs / Pixabay

SpringWorks Therapeutics Beefs Up Programs with Handsome Funding

  • Post author:Andres Rovira
  • Post published:September 26, 2017
  • Post category:Neurofibromatosis

Care to be inspired today? There's a group of inspirational world-changers named SpringWorks Therapeutics. These pioneers are on a mission to unite scientists, biopharmaceutical partners, patient groups and philanthropists to…

Continue Reading SpringWorks Therapeutics Beefs Up Programs with Handsome Funding
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