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Rare Community Profiles: The Only One Diagnosed in the US: Why Gabby is Starting Conversations on NLSD-M

Post author:Jessica Lynn
Post published:July 2, 2024
Post category:Neutral lipid storage disease with myopathy

Rare Community Profiles is a Patient Worthy article series of long-form interviews featuring various stakeholders in the rare disease community, such as patients, their families, advocates, scientists, and more.'…

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This Men's Health Awareness month, share your authentic story with others. Raise awareness and inspire change!

We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.

Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

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Rare Community Profiles: The Only One Diagnosed in the US: Why Gabby is Starting Conversations on NLSD-M

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