Good Morning America Spotlights Girl with Rare Disease Mesmerized by Inclusive Beauty Ad

Post author:Jean Martell
Post published:September 1, 2019
Post category:Pontoneocerebellar Hypoplasia

Recently, Good Morning America demonstrated the importance of showing children with disabilties examples of diversity in the media. Carolyn Anderson shared with the popular morning show how her 4-year-old-daughter Maren…

Get Involved

This Men's Health Awareness month, share your authentic story with others. Raise awareness and inspire change!

We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.

Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Get Involved

Good Morning America Spotlights Girl with Rare Disease Mesmerized by Inclusive Beauty Ad

Metastatic Breast Cancer: Navigating Grief

Rethinking What It Means to Live With Acromegaly

The Let’s Chat CAR T One-on-One Mentor Program: Speaking with Someone Who Understands What You Are Going Through

Get Involved

Let’s Work Together!

Keep Up to Date

Learn More