Obtener un diagnóstico para una enfermedad rara tiende a ser muy difícil. Los médicos no esperan de inmediato que condiciones raras causen los síntomas; Primero culpan a las condiciones más…
Nosotroscreemos que lospacientes de enfermedadesraras son personas, no undiagnóstico. A través de la educación, conciencia, y unpoco de humor – ayudamospacientes, suscuidadores y simpatizantesbrindándolesnoticias e historiasrelevantesya menudo inspiradoras.
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