La porfiria es una enfermedad sanguínea rara, con menos de 20,000 casos en los Estados Unidos cada año. Debido a esta rareza, muchas personas desconocen que los síntomas que experimentan…
Nosotroscreemos que lospacientes de enfermedadesraras son personas, no undiagnóstico. A través de la educación, conciencia, y unpoco de humor – ayudamospacientes, suscuidadores y simpatizantesbrindándolesnoticias e historiasrelevantesya menudo inspiradoras.
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