En 2018, China declaró que la hiperplasia suprarrenal congénita (CAH) es una enfermedad rara y se estima que afecta a 1 de cada 6084 nacimientos chinos. Sin embargo, actualmente…
Nosotroscreemos que lospacientes de enfermedadesraras son personas, no undiagnóstico. A través de la educación, conciencia, y unpoco de humor – ayudamospacientes, suscuidadores y simpatizantesbrindándolesnoticias e historiasrelevantesya menudo inspiradoras.
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