Un artículo reciente publicado en Pharma Literati de India cita a la Organización Mundial de la Salud como que no ha respaldado una definición de enfermedades raras. La Unión Europea…
Nosotroscreemos que lospacientes de enfermedadesraras son personas, no undiagnóstico. A través de la educación, conciencia, y unpoco de humor – ayudamospacientes, suscuidadores y simpatizantesbrindándolesnoticias e historiasrelevantesya menudo inspiradoras.
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