Las personas con atrofia muscular espinal y otras enfermedades raras con poco o ningún tratamiento aprobado han tenido recientemente la esperanza de una cura renovada por el concepto de terapia…
Nosotroscreemos que lospacientes de enfermedadesraras son personas, no undiagnóstico. A través de la educación, conciencia, y unpoco de humor – ayudamospacientes, suscuidadores y simpatizantesbrindándolesnoticias e historiasrelevantesya menudo inspiradoras.
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