Según una historia de Kractivist, Payel Bhattacharya, de 38 años, tiene el raro trastorno genético de la enfermedad de Von Hippel-Lindau, o VHL. Payel ha escrito un libro sobre su…
Nosotroscreemos que lospacientes de enfermedadesraras son personas, no undiagnóstico. A través de la educación, conciencia, y unpoco de humor – ayudamospacientes, suscuidadores y simpatizantesbrindándolesnoticias e historiasrelevantesya menudo inspiradoras.
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