¿Quiere marcar la diferencia en la defensa del paciente y la educación sobre enfermedades raras? Bueno, esta es tu oportunidad. Cada año, la Dystonia Medical Research Foundation (DMRF) realiza…
Nosotroscreemos que lospacientes de enfermedadesraras son personas, no undiagnóstico. A través de la educación, conciencia, y unpoco de humor – ayudamospacientes, suscuidadores y simpatizantesbrindándolesnoticias e historiasrelevantesya menudo inspiradoras.
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