Un diagnóstico significa todo para un paciente de enfermedades raras. Sin embargo, para procesar 200 registros de pacientes manualmente, el médico más dedicado tomaría aproximadamente 40 horas. Esa es una…
Nosotroscreemos que lospacientes de enfermedadesraras son personas, no undiagnóstico. A través de la educación, conciencia, y unpoco de humor – ayudamospacientes, suscuidadores y simpatizantesbrindándolesnoticias e historiasrelevantesya menudo inspiradoras.
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