El Reino Unido ha dado un gran paso en la dirección correcta para los pacientes con enfermedades raras, ya que ha creado recientemente el Marco de Enfermedades Raras del Reino…
Nosotroscreemos que lospacientes de enfermedadesraras son personas, no undiagnóstico. A través de la educación, conciencia, y unpoco de humor – ayudamospacientes, suscuidadores y simpatizantesbrindándolesnoticias e historiasrelevantesya menudo inspiradoras.
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