Para Emma, la peor parte de recibir su diagnóstico de espondilitis anquilosante no fue adaptarse al dolor constante, perder el aliento durante cinco minutos de pie, estar demasiado cansada para…
Nosotroscreemos que lospacientes de enfermedadesraras son personas, no undiagnóstico. A través de la educación, conciencia, y unpoco de humor – ayudamospacientes, suscuidadores y simpatizantesbrindándolesnoticias e historiasrelevantesya menudo inspiradoras.
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