Las últimas décadas han visto un progreso significativo en lo que respecta a la atención médica para enfermedades raras. Las tareas que los doctores una vez esclavizados fueron transformadas con…
Nosotroscreemos que lospacientes de enfermedadesraras son personas, no undiagnóstico. A través de la educación, conciencia, y unpoco de humor – ayudamospacientes, suscuidadores y simpatizantesbrindándolesnoticias e historiasrelevantesya menudo inspiradoras.
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