Sanath Ramesh, un ingeniero de software, creó la organización sin fines de lucro Open Treatments después de que su hijo naciera con una condición extremadamente rara sin opciones de tratamiento…
Nosotroscreemos que lospacientes de enfermedadesraras son personas, no undiagnóstico. A través de la educación, conciencia, y unpoco de humor – ayudamospacientes, suscuidadores y simpatizantesbrindándolesnoticias e historiasrelevantesya menudo inspiradoras.
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