Mientras que las enfermedades raras afectan a las personas que nos rodean, a menudo la prensa convencional . Es por eso que es muy importante cuando un medio de noticias…
Nosotroscreemos que lospacientes de enfermedadesraras son personas, no undiagnóstico. A través de la educación, conciencia, y unpoco de humor – ayudamospacientes, suscuidadores y simpatizantesbrindándolesnoticias e historiasrelevantesya menudo inspiradoras.
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