Digital Community Weekend

November 20-21, 2021

Alex, The Leukodystrophy Charity (Alex TLC) provides invaluable support and information to people affected by a genetic leukodystrophy. We are holding a digital community weekend on Saturday 20^th and Sunday 21^st November. Our weekend will include presentations about condition management, access to medicines, newborn screening, updates on existing and new research initiatives. There will be a professional round table, bringing research companies and medical professionals together to share information and encourage collaboration and progress. You will be able to enjoy a variety of activities including wellbeing workshops, sessions to help understand and get involved with the work of Alex TLC, and entertainment. There will also be opportunities to speak to others facing similar challenges to you.

To learn more about this event, click here.

To get register for this event, click here.