Acknowledgment: This story is sponsored by Ultragenyx and is promoted through the Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant, vetted and valuable information to the rare disease community.

Tune in on May 4 at 2 PM PT | 4 PM CT | 5 PM ET for our XLHLink Facebook Live event: Emily’s Journey With XLH. During this special #XLH event, you’ll hear Emily, caring for a daughter who also has XLH, share her journey to diagnosis and the impact it had on her family in a discussion with Dr. Joshua Zaritsky, Pediatric Nephrologist and XLH specialist.

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