This event has passed.

SynGAP Research Fund’s Severe Behaviors and Advocacy Webinar

Name: SynGAP Research Fund’s Severe Behaviors and Advocacy Webinar
Start: 2022-04-06T12:00:00-04:00
End: 2022-04-06T13:00:00-04:00

April 6, 2022 @ 12:00 pm - 1:00 pm

The SynGAP Research Fund: Severe Behaviors & Advocacy

April 6, 2022

Speaker: Jackie Kancir, Policy Committee, National Council on Severe Autism 21-22 Scholar, Partners in Policymaking

To register, click here.

+ Google Calendar + Add to iCalendar

Details

Date:: April 6, 2022
Time:: 12:00 pm - 1:00 pm
Event Category:: SYNGAP1
Event Tags:: Event, SYNGAP1, SYNGAP1 disorder
Website:: Syngap.Fund/Jackie

Organizer

: The SynGAP Research Fund
Phone:: (650) 441-4191
Email:: info@syngapresearchfund.org
Website:: syngapresearchfund.org

Get Involved

Ready to get involved with Patient Worthy? Share your authentic story with others. Raise awareness and inspire change!

Contact Us

We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.

Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Get Involved

SynGAP Research Fund’s Severe Behaviors and Advocacy Webinar

April 6, 2022 @ 12:00 pm - 1:00 pm

The SynGAP Research Fund: Severe Behaviors & Advocacy

To register, click here.

Details

Organizer

Metastatic Breast Cancer: Navigating Grief

Rethinking What It Means to Live With Acromegaly

The Let’s Chat CAR T One-on-One Mentor Program: Speaking with Someone Who Understands What You Are Going Through

Get Involved

Let’s Work Together!

Keep Up to Date

Learn More