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Events for June 23, 2018

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The CCHS Network’s 5th International CCHS Conference

June 20, 2018 - June 23, 2018
Chase Park Plaza, 212 N. Kingshighway Blvd
St. Louis, MO United States
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$200

"The Future is NOW—Priorities, Partnerships, and Patient Voice" The conference will be an event for health professionals and CCHS patient community to come together in collaboration, communication, and support. Attendees will learn about the latest in CCHS research and treatments. Registration Members: FREE Professionals/Non-members: $200 With dinner (one person/two people): $250/$300

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The Pitt-Hopkins Research Foundation’s Family Conference & Scientific Symposium

June 21, 2018 - June 23, 2018
Embassy Suites by Hilton, 2800 American Boulevard West
Minneapolis, MN United States
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$40

2018 Family Conference & Scientific Symposium This conference will be an opportunity for Pitts-Hopkins syndrome patients and medical researchers to come together, collaborate, and network. Patients and their families will have the opportunity to learn the latest in treatment and research. Registration Parents, caregivers (single day): $40 Adult lunch (per day): $10 Child lunch, 0-18 […]

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Choroideremia Research Foundation’s 2018 Conference

June 21, 2018 - June 24, 2018
Embassy Suites Dallas, 4650 West Airport Freeway
Irving, TX United States
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$100

2018 CRF Conference The conference will be a chance for families impacted by choroideremia to share with one another and build community. Conferences are held every two years and are opportunities to learn about the latest research and treatments for choroideremia. Registration Early registration (until 4/15): $100/$25/FREE (Adult/Teens/Children 12 and under) Regular registration: $125/$50/FREE (Adults/Teens/Children […]

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Alternating Hemiplegia of Childhood Foundation’s Family Meeting 2018

June 22, 2018 - June 24, 2018
Renaissance Woodbridge Hotel, 515 US Highway 1 South
Iselin, NJ United States
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$50

Family Meeting 2018 This is an opportunity for families affected by alternating hemiplegia of childhood to come together and realize that they are not alone. Families will meet up to share stories, struggles, and advice. Registration Family of 5 or less: $130/$180 (before 5/15/after 5/15) Couple: $80/$130 (before 5/15/after 5/15) Individuals: $50/$75 (before 5/15/after 5/15) […]

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Dysautonomia International’s 6th Annual Conference

June 22, 2018 - June 24, 2018
Sheraton Music City Hotel, 777 ​McGavock ​Pike
Nashville, TN United States
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$275

"Together We Rock" This conference will consist of educational seminars, patient advocacy training, and inspiring public speakers. This conference will focus on autonomic disorders such as postural orthostatic tachycardia syndrome. Patients, researchers, caregivers, industry reps, and nonprofit leaders are invited to attend the event. Registration Before May 11th, 2018: $275 After May 11: $325

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PSC Partners Seeking a Cure’s 2018 Annual Conference

June 22, 2018 - June 24, 2018
Sheraton Grand Sacramento, 1230 J St
Sacramento, CA United States
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$220

14th Annual Conference The conference will be an opportunity for caregivers and patients to share and collaborate with one another. Topics will include the latest in primary sclerosing cholangitis news, research, and treatments. No one under age 13 is permitted to attend the conference. Registration Early bird (until 4/8): $200 Regular (4/9-5/28): $220 Late (5/29-6/9): […]

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The Cutaneous Lymphoma Foundation’s Patient Conference

June 23, 2018 - June 24, 2018
Bethesda North Marriott Hotel & Conference Center, 5701 Marinelli Road
Rockville, MD United States
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This two day conference will be an opportunity for the cutaneous T-cell lymphoma patient community to come together and build community and fellowship. In addition, attendees will have the opportunity to learn the latest in clinical research and treatments related to cutaneous T-cell lymphoma. Registering for this event is free, although hotel accommodations are not […]

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The United Leukodystrophy Foundation’s Scientific Symposium and Family Conference

June 23, 2018 - June 25, 2018
Sheraton Charlotte Hotel and Le Meridien Charlotte, 555 South McDowell Street, North Tower
Charlotte, NC United States
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$150

The 2018 Scientific Symposium and Family Conference This conference will consist of a scientific symposium program that will allow medical professionals and researchers to present the latest research in the field of leukodystrophy. There will also be a separate family conference that will allow members of the leukodystrophy patient community to network, share stories, and […]

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8:30 am

Aplastic Anemia and MDS International Foundation’s Living with Aplastic Anemia, MDS, and PNH Conference

June 23, 2018 @ 8:30 am - 4:10 pm
Fred Hutchinson Cancer Research Center, 1100 Fairview Avenue North
Seattle, WA United States
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A patient and family conference for people with aplastic anemia, myelodysplastic syndromes, paroxysmal nocturnal hemoglobinuria, and acute myeloid leukemia. Nurses, caregivers, or other health professionals are also encouraged to attend. Learn more information about facing these diseases every day and meet powerful survivors that can understand the challenges.  

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Aplastic Anemia and MDS International Foundation’s Patient Conference

June 23, 2018 @ 8:30 am - 4:10 pm
Fred Hutchinson Cancer Research Center, 1100 Fairview Avenue North
Seattle, WA United States
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The 7th Seattle Patient Conference: Aplastic Anemia, MDS, and PNH A patient and family conference for people with aplastic anemia, myelodysplastic syndromes, paroxysmal nocturnal hemoglobinuria, and acute myeloid leukemia. Nurses, caregivers, or other health professionals are also encouraged to attend. Learn more information about facing these diseases every day and meet powerful survivors that can understand the […]

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