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Choroideremia Research Foundation’s 2018 Conference
$100
2018 CRF Conference The conference will be a chance for families impacted by choroideremia to share with one another and build community. Conferences are held every two years and are opportunities to learn about the latest research and treatments for choroideremia. Registration Early registration (until 4/15): $100/$25/FREE (Adult/Teens/Children 12 and under) Regular registration: $125/$50/FREE (Adults/Teens/Children […]
Find out more »Alternating Hemiplegia of Childhood Foundation’s Family Meeting 2018
$50
Family Meeting 2018 This is an opportunity for families affected by alternating hemiplegia of childhood to come together and realize that they are not alone. Families will meet up to share stories, struggles, and advice. Registration Family of 5 or less: $130/$180 (before 5/15/after 5/15) Couple: $80/$130 (before 5/15/after 5/15) Individuals: $50/$75 (before 5/15/after 5/15) […]
Find out more »Dysautonomia International’s 6th Annual Conference
$275
"Together We Rock" This conference will consist of educational seminars, patient advocacy training, and inspiring public speakers. This conference will focus on autonomic disorders such as postural orthostatic tachycardia syndrome. Patients, researchers, caregivers, industry reps, and nonprofit leaders are invited to attend the event. Registration Before May 11th, 2018: $275 After May 11: $325
Find out more »PSC Partners Seeking a Cure’s 2018 Annual Conference
$220
14th Annual Conference The conference will be an opportunity for caregivers and patients to share and collaborate with one another. Topics will include the latest in primary sclerosing cholangitis news, research, and treatments. No one under age 13 is permitted to attend the conference. Registration Early bird (until 4/8): $200 Regular (4/9-5/28): $220 Late (5/29-6/9): […]
Find out more »The Cutaneous Lymphoma Foundation’s Patient Conference
This two day conference will be an opportunity for the cutaneous T-cell lymphoma patient community to come together and build community and fellowship. In addition, attendees will have the opportunity to learn the latest in clinical research and treatments related to cutaneous T-cell lymphoma. Registering for this event is free, although hotel accommodations are not […]
Find out more »The United Leukodystrophy Foundation’s Scientific Symposium and Family Conference
$150
The 2018 Scientific Symposium and Family Conference This conference will consist of a scientific symposium program that will allow medical professionals and researchers to present the latest research in the field of leukodystrophy. There will also be a separate family conference that will allow members of the leukodystrophy patient community to network, share stories, and […]
Find out more »The Oley Foundation’s Annual Conference
The 2018 Oley Consumer/Clinician Conference This conference will be an opportunity for patients with short bowel syndrome or other conditions that must use intravenous nutrition and feeding tubes to learn more about these therapies. In addition, participants will be able to consult with care providers and clinicians in order to get their questions answered. Registration […]
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