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The National Fabry Disease Foundation’s Fabry Family Education Conference
This educational conference is tailored for patients and their families. Participants will have the opportunity to learn the latest information about treatment and Fabry disease research. The event will also include activities to help spread awareness about Fabry disease. Keep tabs on the conference website, where logistical details should be posted soon.
Find out more »The Myositis Association’s Annual Patient Conference
$225
The 2018 Annual Patient Conference This conference will be an opportunity for patients, their families, and caregivers to learn the latest in research for various forms of myositis, such as dermatomyositis and inclusion body myositis.
Find out more »The Coffin-Siris Syndrome Foundation’s Conference 2018
This patient conference will be a chance for patient families affected by Coffin-Siris syndrome to come together to learn more about the disorder. In addition attendees will be able to network, share stories, build community, and just have fun with each other. To learn more about this event, email [email protected].
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